Hashimoto and coeliac: hi there - anyone else out... - Thyroid UK

Thyroid UK

141,183 members166,422 posts

Hashimoto and coeliac

5 Replies

hi there - anyone else out there had the experience of having hashimotos for years then discovering they are coeliac? And if so did going strictly gluten-free have an impact on your need for thyroid medication? I've been on levothyroxine for decades (varying between 100-200mcg, it went up during pregnancy stayed up for a while after, now back to 100mcg). It's never been particularly troublesome and I have generally felt fine.

But I'm feeling definitely twitchy at the moment and am intrigued as to whether i might need to drop my levo dose further (got docs appt to do blood test in a couple of weeks). I've been strictly gluten free for 3 months, but pretty much gluten free for a year before that (I was diagnosed with coeliac 3 months ago but had suspicions for a good while before).

Anyone had similar? I had absolutely no idea until I had a look around here that gluten had any impact at all on thyroid disease. Is it generally acknowledged by GPs does anyone know?

thanks in advance

Tillyxx

Read more about...
5 Replies
Clutter profile image
Clutter

Tillyxx,

Gluten will have affected your absorption of Levothyroxine. It is quite normal for coeliac patients adopting a gluten-free diet to eventually require a significant reduction in dose as their absorption improves when their gut heals.

in reply toClutter

thanks Clutter - well there's a benefit i didn't anticipate from the coeliac diagnosis :)

crimple profile image
crimple

My personal experience is that GP's know nothing about gluten and antibodies, even endo's know nothing. I found out from this site once I had raised TPO's that it was important to stick to gluten free diet. By being Gfree I almost totally got rid of my TPO's and felt a lot better, much to amazement of the medics.

Wombletor profile image
Wombletor

Hi

I have hashimotos and coeliac. Before I was diagnosed with coeliac my thyroid levels fluctuated and meds were changed at every endo appt. Once I was diagnosed and adopted a gf diet, my levels became stable, so much so that I was discharged from the endo clinic. Even during my pregnancy, everything was stable, and post natally. Furthermore, my ESR and crp levels are undetectable, meaning there's no inflammation present. I feel GF was the change for me.

judburke profile image
judburke

I have been underactive for 15 yrs and had a surprise diagnosis of Coeliac 18 months ago. Going GF is really helping my thyroid - My vitamin and iron/ferritin levels are much improved and the levels are easier to maintain (you need good levels to support the healing of your gut and for thyroid to function well). My thyroid antibodies are starting to reduce and I think that is possibly due to the Gluten Free. I have been watching some videos of Functional Doctors in USA who advocate Gluten Free for anyone who has a bad thyroid which is never mentioned by British doctors. I wish they had told me that years ago as the Coeliac might have been avoided.

I too am on much lower thyroid meds now my gut is healthier

Good luck with the GF diet :)

Not what you're looking for?

You may also like...

Coeliac blood test question

Hello, I have Hashimoto’s & I recently posted with my test results and got some great advice as to...
jenny999 profile image

Coeliac Disease and Levothyroxine

Coeliac Disease and Levothyroxine. I have coeliacs and follow a gluten free diet. This is not...

Hashimoto's disease and coeliac

Hello everyone. I'm new to the forum and hoping someone may be able to give me some advice please....
KirstineR profile image

At home test for coeliac disease?

Can anyone recommend one? I have hashimotos, and symptoms of coeliac, chronic constipation,...

Gluten free and non hashis or coeliac- anyone tried and feel better?

Just wondering if anyone who isn't either hashis or coeliac has found a gluten free diet helpful....
Olsbird profile image

Moderation team

See all
Jaydee1507 profile image
Jaydee1507Administrator
PurpleNails profile image
PurpleNailsAdministrator
SlowDragon profile image
SlowDragonAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.