Coeliac psychological symptoms : Are doctors in... - Thyroid UK

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Coeliac psychological symptoms

sobs1962 profile image
6 Replies

Are doctors in the uk aware of the possible impact of gluten sensitivity/coeliac disease on mental health and more specifically anxiety and depression?

I spoke to a GP yesterday (on the phone) regarding the symptoms I have been having ie pain in stomach and bowels, flatulence and constant green poo for at least 18 months and also said my anxiety and depression have got worse over the last couple of months and he has agreed to test me for coeliac disease in a couple of weeks time (July13th)

I have been avoiding bread for a few years now but I know that you need to include it in your diet so that it will cause raised antibodies. Foods that didn't have any effect on me are now causing pain and flatulence such as rich tea biscuits, digestive biscuits and breakfast cereals.

I genuinely don't want a diagnosis of coeliac disease of course as I know I'll feel completely overwhelmed by the thought of having to completely change my diet and my bpd is going to make it near impossible, because when I feel overwhelmed it triggers lots of self destructive behaviours and I don't know if I can stay calm enough to deal with it all, plus the fact that I struggle with trying to be nice to myself even though not doing so will make me more ill.

Any advice on what to eat and how much leading up to my blood test on 13th July as obviously don't want it to be coeliac but I doubt if uk doctors have heard of or believe in NCGS, so if not coeliac, I'm pretty much screwed.

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SlowDragon profile image
SlowDragonAdministrator

Vast majority of Hashimoto’s patients are gluten intolerant not coeliac, but it’s worth ruling out coeliac with blood tests first…..but you do need to be eating high levels gluten for 6 weeks before test ….only you can decide if that’s worth it

Gastroenterologist are far more open to NCGS

Gluten free diet does need to be absolutely strictly gluten free to be effective

Cutting gluten can significantly reduce anxiety, so it’s always worth trying

There are absolutely loads of excellent gluten free options

Plenty of great GF biscuits, cereal and bread available. It’s not difficult to do…..once you get use to it

Once you go gluten free ….Get rid of all gluten containing foods in cupboards/fridge . That way you can’t have a weak moment and eat something with gluten in

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

hypothyroidmom.com/how-to-l...

Eliminate Gluten. Even if you don’t have Hashimoto’s. Even if you have “no adverse reactions”. Eliminate gluten. There are no universal rules except this one.

Why gluten intolerance can upset cortisol levels

kalishinstitute.com/blog/gl...

sobs1962 profile image
sobs1962 in reply toSlowDragon

Thanks for reply,don't know why it's posted 3 times but it has. You say I need to be eating high amounts of gluten 6 weeks before a blood test, what constitutes high amounts? Was just going to add bread back into my diet as am currently eating a lot of cake which contains high amounts of wheat flour but biscuits really give me pain and tightening, so do you think if I eat more of these things before my blood test on 13th July, it'll be enough?

SlowDragon profile image
SlowDragonAdministrator in reply tosobs1962

Possibly….but if it’s gluten intolerance test will be negative anyway

sobs1962 profile image
sobs1962 in reply toSlowDragon

Is it possible for gluten intolerance to develop into Coeliac disease?

SlowDragon profile image
SlowDragonAdministrator in reply tosobs1962

It’s a very inaccurate test ….misses many who are coeliac and gives false positives for ones who aren’t coeliac

I tested negative for Coeliac twice. Zero gut issues, but have Hashimoto’s.

Endoscopy showed extensive damage exactly as if coeliac ….gastroenterologist was convinced I am coeliac

So much so he did DNA test ….this said “probably not coeliac “

Result was immaterial to me……absolutely strictly gluten free diet was astounding improvement

More on my profile

sobs1962 profile image
sobs1962 in reply toSlowDragon

I was diagnosed with IBS years ago and was taking antispasmodic but haven't taken it for about 18 months and wonder of it's just that raising it's ugly head again and wonder if I should cancel blood test as if it's so inaccurate I don't want to put my stress levels up as I've suffered from chronic stress since I was a child and it's probably what's responsible for me having autoimmune conditions in the first place. Now in long term therapy for my bpd and hope it will help to calm my mind and my body may follow. Always anxious and stressed but have started taking CBD and seems to be going OK so far. Thanks for your time and advice.

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