Just back from the endo who I got sent to, to try and hold on to my T3 which I have been on for 4 years (ie T3 only), following the CCG debacle telling our local GPs that they may not prescribe T3 any more.
Luckily this endo (happy to name him, but I think you prefer not to here?), is sympathetic to T3 users, and has done some useful research on the D102 enzyme. He had already written to the CCG who thankfully have now backed down as long as the T3 patients are reviewed.
Anyway, although all the rest of his patients are on a combo of T3/T4, and I am the only one T3 only (I originally saw a different endo, but he has moved on), he was happy for me to stay on T3 only but felt that my dose of 55mcg (spread over 3 doses) was too high because my TSH is below range. He said he was quite happy for it to be low but would prefer for it to be detectable, although he did say ultimately that the risk was mine (ie re osteoporosis and Atrial Fibrillation). As a result I am going to try to reduce it to 45 mcg (in 3 doses) and see how I do and be retested in a month's time.
Somehow I thought I had read here that with T3 the TSH was always suppressed, but I am not sure now, and if I did, why is it? I did challenge him on this but he said that he found the opposite, which rather threw me. What do people think about it being below range? I have recently worked out that I am Histamine Intolerant, and I am now thinking that some of my symptoms (I ended up with an ME/CFS diagnosis some 8 years ago on top of the hypothyroid one 20 years ago) are down to the histamine intolerance, so I may be OK on the lower dose anyway.