Because of the CCG T3 debacle, I am due to see a new endo in a few weeks time. I have already been told that my CCG will not pay for it any more, so I requested going back to the endo I saw originally who approved me to try T3 only for 4 years, monitored by my GP. I did try T3/T4 but really didn't get on well with that, after being T4 only for 17 years.
I cannot see the original endo as he has moved on to .....diabetes research (ha ha I wonder why....) but he has kindly referred me to someone who apparently has been involved in T3 studies (not sure who yet as am waiting for the letter).
I am already rehearsing my words and wondering what line he will take and if the hospital will fund it if the CCG refuse. What I wanted to ask here is how much research has ACTUALLY been done on patients on T3 only? I suspect that it's not a lot. How can I find out? Did John Lowe do actual research on this?
I suspect that he maybe will agree to me being on a mix of T4/T3 at best, but I really don't want to go down that road again. If it's not broke, why fix it?