My son is nearly two - he has congenital hypothyroidism and was born with no thyroid at all. He has been fine with levothyroxine up until about 6 months ago. His blood results have shown his TSH high, but his thyroxine is normal at every test. Is this something to be concerned about?
His consultant says he's on a high dose of levothyroxine already and asks me constantly if he's missed any doses - 100% he has not, although, given his age I can't say he's not spat some out, but I'm talking 4 separate lots of blood tests over the last 6 months saying the same...
He's upped his down again anyway and has requested tests in 2 weeks... but it's concerning me that the results are consistently off for such a long time.
Any help is much appreciated!
Written by
raerobertz
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I am very sorry your child has congenital hypothyroidism and the fact that he cannot explain if he feels unwell and you're unaware of it.
I don't know anything about hypo in children and some members may do so.
I will mention that some people have a genetic fault in which they cannot convert levothyroxine (T4) to the active hormone T3. Before levothyroxine and blood tests were introduced we were given Natural Dessicated Thyroid Hormones which have all of the hormones we cannot produce. False Statements have since been made to make levo the only one to be prescribed I assume due to Big Pharma's persuasions.
Also one of our scientists has had an award for his article stating the need of T3 to T4 (liothyronine in addition to levothyroxine) . Maybe your child needs some liothyronine.
It must be difficult for you and your son because he is too young to pass on complicated information. There is a way that you might be able to overcome this to a slight extent by monitoring your son's temperature (if he will co-operate).
Also, throughout his childhood please monitor his nutrient levels. Hypothyroid people tend not to absorb vitamins and minerals from food very well because of low stomach acid, and nutrient deficiencies are common as a result. Nutrient levels need to be optimal. Just scraping along the bottom of the reference range is not good for anyone, particularly hypothyroid people.
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