I'm currently overwhelmed by my symptoms and need to understand what to say to my GP to ensure that I get the treatment that makes me feel well again. I've been putting up with feeling lethargic, tired, physically weak, brain fog, aching arms & legs, weight gain, and sometimes feel like I'm staring out of a swollen body that doesn't belong to me? I sometimes find it challenging doing simple everyday tasks and end up sleeping for hours to compensate for what I would class as 'normal' activity.
I became hyperthyroid a number of years ago and was treated with carbimazole - I really didn't like this medication as it caused me to balloon. It became apparent that I was really sensitive to it and 5mg was a high enough dose for me, despite me being through through the ceiling at the time. (I'm mentioned this sensitivity in case it's relevant).
After big do's and little do's I eventually relented and had the radioactive iodine treatment just under three years ago.
At first I went even more hyper, and it took about 15 months for me to become hypo. I was then prescribed thyroxine 50mg, I still didn't feel quite right and managed to persuade my GP to increase my dose to 75mg which is the dose I am taking now. At one point my GP wanted to reduce me back to 50mg becasue my T4 was 22.4 (range 11-22.6) and my TSH was 0.01 (0.2-4.0) when my T4 was at the top end of normal I actually felt reasonably well.
Since this time I feel like I've had to monitor myself really, I'm required to have a blood test every 3 months and when I phone for the results I get the standard - it says tell patient it's normal. I've put up with feeling so tired and unwell as described above because I started to believe that it must just 'be me' - It's my age, this must be how it feels to be 49years, it can't be my thyroid as I'm within the range, and when I've tried to discuss this I've been (for want of a better word) fobbed off with your TSH is low so we can't increase your medication.
Apologies for the lengthiness of my post - I thought it would help to give a bit of background to how I've ended up at this point. Last April (2015) I weighed 20stone, I managed to lose 9 stone by this April (2016) by consuming no more than 800 calories a day. I have now re-gained three stone of that since April
I am convinced that this is related to my thyroid, as when I was put on carbimazole for hyper originally on a high dose I gained 7 stone and lost it, only to re-gain it again when I became hypo. I'm pretty much at rock bottom, and am at a total loss at to what to do as I can't keep doing this.
I organised thyroid bloods through my GP last week and the results were as follows...
T4 10.3 (10-25)
TSH 0.16 (0.2-4.0)
I made an appointment to discuss the results and the GP I saw (locum) said she wanted me to have a re-test and include my T3
I got the results this morning - they read as follows...
T4 13.2 (10-25)
T3 4.3 (no range given so am using Britisih Thyroid ones as a guide here (4.0-8.3)
TSH 0.14 (0.2-4.0)
I'm going to try and see someone tomorrow (can only phone on the day) and want to try to get across that whatever these bloods show - I feel very hypo. The TSH seems to be the stumbling block? - as they tell me it means I'm still hyper and it could be dangerous to increase my meds?
Having read some of the wealth of info on here (not easy with this brain fog) I want to explore T4 and T3 or natural thyroid, but am worried that they'll knock me straight back because of my TSH?
Any help appreciated - I can't go on like this, but I feel like I've got a battle on my hands convinced a Doctor that I need something different.
[I asked for a print out with the last 12 months results and found that mostly they've just done the TSH or TSH & T4]
T4 8.3 (11-22.6)
TSH 11.1 (0.2-4.0)
T4 14.9 (as above)
TSH 0.13 (as above)
T4 10.3 (11-22.6)
TSH 0.16 (0.2-4.01)
T4 13.2 (11-22.6)
TSH 0.14 (0.2-4.01)
T3 4.3 (not sure of range)
[not fully sure when I increased to 75mg, think it was last October]
Many thanks for reading through this, if you can help - please reply