I've been taking 100mcg of levo now for about 10 years (was on 75 for 13 years) but have never really felt 'right', despite all my blood tests coming back ok or at least that is what the GP said. He thought I might be 'depressed' (this is a running theme) I upped my dose myself for six months and then confessed to the GP who on checking my bloods said it was ok and to carry on.
About 5 years ago I had a bereavement that I didn't deal with very well and was signed off work for 5 weeks whilst they sorted out AD medication. After counselling and other lifestyle exercises I came off the AD as I felt dreadful and even more zonked than normal.
A year or two ago I went back and said I was still struggling with energy, aches and pains and one GP suggested I alternate from 100 to 125 but they wanted to double check my bloods. Cue an endless round of bloods - ESR was elevated and I had a Vitamin D deficiency. They did suggest I was depressed (as previously) but I insisted I wasn't. However they did say that I was to stay on 100 now.
Then had a run of bad health - first bowel problems which meant a CT, colonoscopy and eventually banding. Then I started having vertigo symptoms which lasted about 2 months and then a myriad of headaches since then (3-4 months now) - I've suffered with migraines since a teenager and this was controlled fairly well with sumatriptan, although the dose has increased over time. However, these were a combination of types of headache, including the usual migraine which is now longer as controlled plus tension headaches, which has the GP stumped. I have private physio on my neck to try and release tension which does help for a bit but it getting rather expensive, plus have given acupuncture a go. There is a family history of strokes in my family but cholesterol, heart rate and blood pressure are perfect, and actually on the low side. The GP asked if I was worried it was something serious but as I told her I only really worry about having a stroke not anything insidious in my brain
I'm due to see a GPwSI who specialises in headaches early in September to try and see if they can find a reason/treatment plan.
I've requested copies of my previous blood test results yesterday (apparently they have to ask the GP if I'm allowed to have them!) but just wondering if anyone had suggestions for next steps? Considering I was diagnosed in my early 20s I'm still a bit clueless about it all