Hi all - I am new here.
I am desperate for advice. My case has been ongoing for more than a year since I figured out that all the symptoms I kept having for years, were not actually because 'this is what my body is like'.
- sensitivity to cold (for at least 12 years now ive been having incredible to the point of shivering when people around me feel comfortable),
-tiredness muscular weakness and extreme fatigue (especially for a year now),
-leg and foot cramps (one after the other)
-dry skin (legs, hands, lips)
-TERRIBLE hairloss - 120-200 hairs a day (I was diagnosed with chronic telogen effluvium (which normally has a cause, which of course the doctors didn't even bother investigating further), 8 months ago as my hairloss became so severe that my hair has been getting shorter on its own.
-not so clear or sharp thinking
incredibly decreased immunity (I catch colds and throat infections very easily and get fevers too)
-normally energetic in the evenings
-unexplained weight gain (I wake up and feel bigger, weigh myself in and I have suddenly gained 5 pounds!) - I don't even eat much and totally avoid sugar!
-feel a surge of energy and good mood immediately after eating and then feel lethargic
was told I was severely deficient in Vitamin D and Iron about 1 year ago (which I am sure is a common thing for people with hashimotos).
I went to my doctor and asked for a full thyroid spectrum test.
everything was within range apart from my anti-bodies which were at 191. She sent me to a consultant. whilst waiting the normal wait, I did some research and went gluten free. 3 days before my appointment with the consultant (3.5 of wait!), the consultant sent me a letter saying she thought I was fine based on my bloodwork results alone!!!!!
in tears and absolutely devastated, I went back to the GP and asked her to run the tests again. I was sure my gluten free diet had started to help as I was mildly less tired but my hairloss had decreased by 40% at least (after 2 months gluten free)!
she run the tests and my antibodies were down to 122. my GP believes me when I say I am not feeling well but dealing with a consultant I have never been seen by, is so frustrating I want to scream and cry at the same time.
going private, is very expensive for me. I am at loss as to what I can do.
I am so desperate and seriously angry that I am thinking about asking the doctor to sign me off so that I have enough time to figure out how to resolve this.
any advice is more than welcome.
thank you <3