Hi
I'm not sure if I'm in the right place, but I was recommended this from another site.
I've been off work with horrendous fatigue, various body pains and brain fog for the past 4 months, following a chest infection back in April. My GP has done some a couple of blood tests and found a vitamin D deficiency (17.5 nmol/l) which they've treated me for - 8 weeks of 40,000 iu, and I've continued to supplement at 5,000 per day since, as well as K2-MK7.
However, the fatigue hasn't changed at all, although the brain fog has improved slightly, as have the body pains. I've been back to the GP and got a copy of my results, but they do not appear interested in helping me and now seem to be insistent on diagnosing Chronic Fatigue Syndrome. I've managed to get a copy of the bloods done back in May, and there definitely things that I think need addressing before CFS should be diagnosed -
B12 is only 216 (range 211- 91)
Ferritin is 22 (range 15-290)
Folate is 7.8 (range 3.5-14.4)
TSH is 4.0 (range 0.2-4)
The question I have, is what should I do next? I've started supplementing with 1,000 B12 & 200mg ferrous sulphate, as well as Vit D & K plus a B vitamin complex. I'm going to ask for further testing in a couple of weeks (the 3 month mark), but should I stop supplementing to get the most accurate results or keep supplementing to help me improve? Any support would be greatly appreciated!
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I definitely think you should hold off on the CFS 'diagnosis', because that will be a dead end.
Your TSH is much too high. The range may go up to 4, but a truly healthy person - no thyroid problems - has a TSH of around one. As soon as you hit 3, you're hypo. But, is this the first time your TSH has been tested? It could be a one off. In any case, your doctor will not take any notice until it goes much higher, but he won't take any notice at all if you get a 'diagnosis' of CFS.
Your B12 is very low, and I think you should take at least 5000 mcg sublingual methylcobalamin. Your folate is also lowish, so make sure your B complex contains methylfolate, to bring it up.
Taking 1000 mg vit C with your iron will increase absorption.
Thank you grey goose. As far as I know this is the first time my TSH been tested. I'm going to ask for it to be redone at my next test along with T3 & T4, plus antibodies. Not sure whether they will or not given that 3 doctors have ignored my TSH (and everything else!) so far. If not, I'll get one from Blue Horizon.
I really don't think it is CFS, but it's hard to go against the authorities, so to speak.
You can refuse a diagnosis if you don't agree. CFS isn't a disease, anyway, it's a syndrome. You cannot be 'diagnosed' with a syndrome. A syndrome is caused by something, but they're too damned lazy - or ignorant - to find the cause. Looking at your blood tests, I would say the cause was obvious!
That is what I thought! But last time I went, I was told that it couldn't be my B12 or Ferritin because I'm not anaemic and they are used to make blood 🤔 And my TSH is only treated at 10. Unfortunately I hadn't read as much then as I have now and was too emotional to come back with a rational reply! So I walked out in floods of tears with what felt like a flea in my ear and no clear plan for what was next. Go home and get yourself better 😕
I know. It's terrible, isn't it! They are so ignorant!
Low B12 and low ferritin can make you feel very ill, you don't need to have anemia - and it's very dangerous to have a low B12 like that, because it can cause irreparable neurological damage. But, doctors don't do nutrition in med school, so consider nutrients to be of no importance. I have been told that they are totally irrelevant! So, I've always supplemented on my own.