HELP I need your advice on Lactose free medication for hyperthyroidism or anything that may help.

[GlitterFairy]

I was Dx with a over active thyroid 10th September 2015. I eventually got to see a consultant on the 14th May. He did write to me in Oct 2015 saying really busy in clinic take these tablets cambrozole (something similar I can't remember sorry) and I will see you in clinic.

The tables didn't agree with me and made my bowels bleed for 5 weeks so I stopped them Dec 2015. End of April 2016 he sent me a prescription for Propylthiouracil which I took for 2 wks they were making me go to the toilet every hr I told him at my appointment that they were making me poorly he said its not the tablets it's your thyroid it make you get diarrhoea. I explained that it's not my thyroid as I have had this left untreated for 9 mnths I have not been going to the toilet for 9 mnths. ( I have Endometriosis it's on my bowel I go to the toilet once a week if I am having a good week ) he told me to increase the dose from 2 tablets twice a day to 4 tablets twice a day and then increase again. I increased for 4 days and was horrifically ill. I was convinced there must be lactose in the tablets as the symptoms were identical. I have a Lactose allergy. There wasn't any information with the tablets but I went online and they say if you have a Lactose allergy do not take.

To cut a long story short, the consultant insists the lactose can't be making me this ill and regardless of how ill I am I must still take them. My Dr doesn't know if there is any lactose free treatments available and neither dose my pharmist, my Dr agrees that I should still take them and use anti diarrhoea tablets. I assured her if I take 8 tablets a day I may be luckyenough to absorb one tablet into my system b4 my body violently rejectsthe tablets.

I really need your help advise suggestions. I am new to this thyroid problem. even though I have had it for 9 mnths I have stupidly allowed the Dr's to mess me about and not even try to educate myself regarding this issue. Any help would be extremely useful and I would be grateful.

Thanks in advance. Xx

[shaws Administrator]

Welcome to our forum and don't beat yourself up as most of us have done what you did - expect the Endocrinologists to know how to treat us. We have since found out most are diabetes specialists rather than thyroid dysfunctions (which can be very varied).

I am hypothyroid so cannot help but those who are/have been hyper will respond with helpful advice.

I think it is awful that we are given medication and we end up being far more unwell and nowhere to turn.

[Justiina]

I don't know if there is lactose free option for hyper, but I know lactose can make you very very ill.

I assume enzymes helping to brake down lactose does not help you? As that would be smarter than take a pill for diarrhoea. Diarrhoea is there for reason in this case and it is to get rid of something harmful. Forcing your body to go through that will end up not so good.

I hope there is lactose free medication for you as this way it is not working at all.