Medication may need raising: Hello everyone Ive... - Thyroid UK

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Medication may need raising

Jelley93 profile image
13 Replies

Hello everyone Ive not posted on here in nearly a year. I have been on 125mcg since May 2021 and have been okay on it. I did a thyroid function medichecks test around that time as well. With a TSH result of 0.31 out of 4.2 and a t3 result of 7.4 out of 6.8. Like I say Ive been taking my levo at around 3am so it works best with breakfast around 2 hours later so far so good. Now yesterday I started to feel a bit off. I felt drunk yet had not drank alcholol. I also felt a bit unbalanced which started ringing alarm bells. This is how it manifested itself last year. Do you reckon My TSH has started to rise again. Its funny because last August when I was doing well my Dr wanted me to lower my dosage to 100mcg and I refused because I knew I would go downhill again.

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Jelley93
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13 Replies
fuchsia-pink profile image
fuchsia-pink

Did you take your levo at 3am on the day of the test - or the day before? What time was the test itself? Did you test free T4 as well? Free T3 is quite a bit OVER range, suggesting you are over-medicated - but if you did the blood test only a few hours after taking your meds (instead of the 24 hour gap recommended here) you will have got a "false high" which makes it harder to interpret ...

greygoose profile image
greygoose in reply to fuchsia-pink

Taking levo just before the blood draw will give a false high FT4, not a false high FT3. It doesn't convert that fast. :)

helvella profile image
helvellaAdministratorThyroid UK in reply to greygoose

The peak of T3 following a dose of T4 has been reported to occur about 48 hours after that dose.

Jelley93 profile image
Jelley93 in reply to fuchsia-pink

No this was last year. Didn't take levo before test. Just been taking at 3am since then so it absorbs better. Test was may 2021

SlowDragon profile image
SlowDragonAdministrator

Important to test vitamin D, folate, ferritin and B12 at least once a year

Feeling drunk, like walking on a rocking boat suggests low B12

What vitamin supplements are you currently taking

Request GP test

Or test privately via Medichecks or Blue horizon

Always test thyroid levels early morning, ideally before 9am and last dose levothyroxine 24 hours before test

SarahJane1471 profile image
SarahJane1471 in reply to SlowDragon

Random I know but one of the latest symptoms of COVID is dizziness 🤷‍♀️

Jelley93 profile image
Jelley93 in reply to SarahJane1471

I had covid in October. It might have affected me in someway I guess. Covid for me was halfway between a cold and flu. But I started to get out of breath after it had cleared up

Jelley93 profile image
Jelley93 in reply to SlowDragon

Phoned up DRS this morning. Expecting a call back. I will try and get a blood test from there. I take vitamin b12 supplement daily. Link is below

SlowDragon profile image
SlowDragonAdministrator in reply to Jelley93

Request vitamin testing or test privately

Are you only taking B12 or vitamin B complex as well

When were vitamin D, folate, ferritin and B12 last tested

REMEMBER.....very important....stop taking any supplements that contain biotin a week before ALL BLOOD TESTS as biotin can falsely affect test results - eg vitamin B complex

Thyroid test

Last dose levothyroxine should be 24 hours before test

As you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test

If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal

Jelley93 profile image
Jelley93 in reply to SlowDragon

amazon.co.uk/Vitamin-B12-10...

This is what I take daily

[ Edited by admin as originally the link did not work. ]

Catseyes235 profile image
Catseyes235

Your dizziness may be due to something else. I started having a similar feeling and like I was listing to one side. Vertigo type symptoms and got pills which I only take occasionally and do the trick. Not everything is related to thyroid although it feels like that sometimes. Good you’ve stuck to your thyroid dose. I reduced and had hypo symptoms so gone back up. I’ve had to ignore TSH as off the scale low and just go byT4 and T3. Good luck.

Jelley93 profile image
Jelley93 in reply to Catseyes235

Yes could be vertigo, however before I was diagnosed with a underactive thyroid. I had glandular fever which in turn caused my hypo. The main symptom of that was this unbalanced feeling. Plus also feeling tired, last time it happened was last May. My dosage was then raised from 100mcg to 125 mcg and the unbalanced feeling disappeared. I think it needs raising again to 150 or even 175. Not sure. I am around 15 stone but do regular exercise could weight determine the dosage you require?

Catseyes235 profile image
Catseyes235 in reply to Jelley93

Not sure. I found it difficult to shift weight for years but I must admit to not being great at portion control even if it was healthy, lots of fruit and veg and mainly organic. However I asked for appointment with Endo and got one. I have really low TSH with hypo symptoms as poor converter. Added a little T3 to meds and think after nearly a year and lowering the dose because of palpitations I’m about okay. Not lost a load of weight but don’t seem to have such a big midriff and double chin.

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