My daughter had her thyroid removed 2 yeas ago. She is now 16 and doing GCSEs. She had been taking 100mcg - 125mcg Levothyroxine on alternate days since then . She had been unwell since the surgery but all blood tests are within the normal ranges. I don't have the results. (She will not grow any further as she has had surgery on her growth plates to stop her 18 months ago - height has stopped. ) She had been exhausted and sleeps as soon as she is home from school, she has gained so much weight she is now a size 18 in clothes. I am a paediatric dietitian and she has been eating about 1200-1400 kcal a day only, she has swollen hands and feet. In the summer her feet are so swollen that she gets tiny blood spots all over them. She experiences tremours regularly. we have discussed the possibility of a T3 containing treatment with her gp, he is reluctant but seems to be coming around to it after recurrent calls from school nurse to bring her home. He suggested changing her to T3 2 x 20mcg per day as he is not sure what the alternative dose would be on a combined therapy. There is no guarantee he will actually do it, we are due to return on Thursday this coming week. I am so desperate for her I am now at the stage where i will try to source it myself via the internet - if only I knew where to get it, but id rather do it with the consent of the GP here if I can Please could anyone advise - re dose of combined therapy or sources of either T3 or combined therapy elsewhere . Help!
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