Not sure what to do as on 100mg of pTU a day , - Thyroid UK

Thyroid UK

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Not sure what to do as on 100mg of pTU a day ,

15 Replies

Hi had bloods done on 20th jan they were , t3, 4.6/3.1/6.8, t4, 24.06, 12/22, tsh,073, then 4 feb , t4, 23.9, tsh, 0.97, 18,feb, t3, 4.7, t4, 19,9, tsh, 1.09, so now I’m at my Normal as when didn’t have a active thyroid it was t4, 20.2, tsh, 0.70, so don’t no if I should stay on that dose as not getting to talk to doctor till Monday , oh and both my antibodies came back negative Help please 🤷‍♀️😌

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15 Replies
Jazzw profile image
Jazzw

So.... re the antibodies... did they do all of

TSI/TRAbs for Graves

TPO/TG for Hashi's

What were the results of those?

in reply to Jazzw

Yea both came back negative

Marz profile image
Marz in reply to

All 4 ?

in reply to Marz

Just what ever they did , said was negative

Jazzw profile image
Jazzw in reply to

You need to find out how what they tested, Ponk. Get them to give you a printout and post the results here. Your doctors aren’t necessarily thinking of testing everything that needs to be tested—we see it here again and again and again. And it’s you who has to pay the price.

You are entitled to your results. They’re yours, not theirs.

in reply to Jazzw

It was the hospital that done them when I had to stay in for a few days

Jazzw profile image
Jazzw in reply to

But a copy of them should have been shared with your GP—so do ask.

Remember—your doctor sees hundreds of patients. You’re a mildly interesting case when you’re sitting in front of them—but within minutes of you leaving they’ve forgotten you and moved on to the next patient. So we have to advocate for ourselves, be a bit more proactive that we traditionally have to be to make sure we get optimal treatment. It’s not that they don’t care—but ultimately you care about you far more than they do.

Marz profile image
Marz in reply to

You need to see the results with your own eyes ...

in reply to Marz

Sorry yea I have seen them as got online thing and see it myself sorry if I didn’t make myself clear . 🙈

Marz profile image
Marz in reply to

So can you post them here ?

in reply to Marz

I have already done that

Jazzw profile image
Jazzw in reply to

I think Marz is talking about your antibodies tests—as am I?

If you have those, could you post them?

Jazzw profile image
Jazzw in reply to

Have you seen this guide to antibodies and what they all mean? thyroiduk.org.uk/tuk/about_...

From previous posts it looks like you said your TPO was normal and your TRAB was normal.

But what about TSI? Was that tested?

Jazzw profile image
Jazzw in reply to Marz

Oh. They’ve gone. :(

Hate it when that happens.

helvella profile image
helvellaAdministratorThyroid UK in reply to Jazzw

I'm sure we all do!

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