Has anybody tried the German brand of Lactose f... - Thyroid UK

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Has anybody tried the German brand of Lactose free Levothyroxine?

Kerrycat7 profile image
13 Replies

Hi

I am interested to see if anybody has experience in using the above drug shipped from Germany.

My Endo has offered me a trial on this as it doesn't contain Lactose however I am sceptical that I am infact needing T3 and that she could be stalling this process and trialling me on something that may not work however I think I may do better on a Lactose free brand of the medication.

Any advice or thoughts?

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Kerrycat7
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13 Replies
Kerrycat7 profile image
Kerrycat7

Hi

Thanks

My Endo has ordered me it but I am still waiting on when it will come through! Hoping the GP doesn't decline it as the Endo specifically has asked for it! 

nightingale-56 profile image
nightingale-56

I have been taking Aliud (Lactose free) Levothyroxine from Germany for the past 18 months (self-funded).  Although this has not done any better than Actavis the only other one I could possibly take) and I do not have a problem with Lactose, it does not 'burn' so much going down.  My local CCG have just given approval of this to be supplied to me via NHS, so this is a big weight off my mind regarding  supply of this Levothyroxine. I feel it is a better quality Levothyroxine than any in UK.  I have also been taking a small amount of T3 for the past 6 months and this has made a small difference to my blood levels and improved my health a little.

I only put the prescription into my local pharmacy this morning and the Pharmacist said what did I want him to do if he could not get it. I said that as I knew Boots had an IDIS account that should not be a problem and left it with him, but for him to phone me if there was a problem.

Kerrycat7 profile image
Kerrycat7 in reply to nightingale-56

Hi, thanks for replying. I have heard good things that it is a lot purer than the NHS levo we get prescribed normally. Can I just ask about the T3 you are on and what dose this is? Is this through the NHS? I still believe that I require T3 too and my Endo is holding off until I try this new medication first.

I may look into trying T3 myself eventually. 

helvella profile image
helvellaAdministratorThyroid UK in reply to Kerrycat7

The idea that it is a lot purer sounds like rumour rather than grounded in reality.

Aliud tablets are bigger than any UK levothyroxine - so there must be a greater amount of excipients - which would mean, overall, less pure! Any other interpretation of its purity (or otherwise) would need information I have never seen. :-)

nightingale-56 profile image
nightingale-56 in reply to Kerrycat7

Hi Kerrycat, I am taking 6.25 mcg of Unipharma T3. At the moment I source and fund this myself, but my local CCG have just agreed to provide this for me along with the 75 mcg of Aliud that I take.  T3 has had a small change in me in a good way.  Hope this helps and wish you well.

Kerrycat7 profile image
Kerrycat7 in reply to nightingale-56

Hi :)

Did your Doctor prescribe the T3? and are they monitoring you on it? 

Kerrycat7 profile image
Kerrycat7 in reply to nightingale-56

I forgot to say is this licensed in the UK? and also do you need to cut the tablet to make that dose?

in reply to Kerrycat7

Only one T3 is licensed in UK - Marcury Pharma. Uni Pharma is Greek T3, can be ordered online and you don't need prescription for it.

Kerrycat7 profile image
Kerrycat7 in reply to

Is the Uni Pharma the T3 you are on? I don't suppose you can direct me to where this or inbox me?

in reply to Kerrycat7

I can send you PM.

nightingale-56 profile image
nightingale-56 in reply to Kerrycat7

There is only one make of T3 licensed in UK and that is by Amdipharm.  I would not take anything made by this company again.  Unipharma is not licensed in UK so would have to be by permission of CCG or privately possibly.  I use a pill cutter from Kleeneze (£2.99 and the best I have found) and cut the 25 mcg tablet into four.  Cutting once and then turning the two halves to cut into quarters.  This works fine for me.

in reply to nightingale-56

Now I am confused - is it Mercury Pharma or Amdipharm?

nightingale-56 profile image
nightingale-56

Sorry Miriam, the make is Mercury Pharma.  Think the overall name of the company is Amdipharm.  Sorry, forgot to say, My GP is monitoring me.

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