I was diagnosed with Hashis about 5 yrs ago - picked up by antibodies levels and also said i had nodules on my thyroid. Bloods been tested regularly and always been 'fine' by GP standards (only TSH and Free T4 measured). I was told my thyroid was fine but that I had chronic Fatigue.
5 years down the line after working my butt off to gradually get better my health has taken a huge turn for the worse. I was convinced it was my thyroid after reading up about it and reluctantly in August last year my GP tested my blood again. At last my blood showed that my thyroid was not doing great and so started me on Levo. On 100 at first then 2 months later after no improvement, upped to 200.
I had 2 days of feeling 'normal' and then it all went downhill again. Desperate I went back to GP and asked about testing t3 and my antibodies but after lots of mumbling it seems he can't get that done on NHS. After balling my eyes out for a while he agreed it may be time to refer me.
I have an appointment with endo on Wednesday this coming week and I want to be armed with things to ask him. I'm guessing a fuller blood workup - these are the only numbers I have so far:
TSH - this week it is 0.010 mU/L - was 10 mU/L in August before starting levo
Free T4 - this week it's 19 pmol/L - it was 8 pmol/L in August
Iron is 10 umol/L now (he started me on supplements as he said this was low.)
Ferretin is 106 ug/L now.
The next two results I don't think I've seen talked about before so I've no idea what they are:
Transferrin 2.62 (2.0-4.0 g/L)
Transferrin sat % is 15%
GP seems to think that as all my levels are back to 'normal' that it's just a matter of time before the drugs start to work. So far the ONLY thing that has improved is my bald patches on my head are no more. I'm exhausted ALL the time, I have aches and pains, terrible headaches that are constant, my skin is itchy, I have no control over my body temp and as soon as I become slightly too hot or too hungry I get nauseas. I put on weight just sniffing chocolate. I'm so fed up with it all and needless to say it's now causing me to be really down all the time.
I used to be a PE teacher until this all kicked in so I've essentially had to abandon my previous life.
I would very much appreciate any advice you can give me in preparation for seeing this endo on Wednesday. I'm guessing ask for a complete blood workup including t3 and antibodies? Try some t3 before abandoning levo and asking for NDT?
Thanks in advance for your valuable time.