Hi, I've never used a forum like this but I really need some advice or even just some empathy.
I've been suffering with hypothyroid symptoms for a couple of years (extreme fatigue, weight gain contrary to lifestyle, dry skin, menstrual problems, very low mood) and have had to beg my GP for blood tests on multiple occasions (always accused of hypochondria) and I'm always "borderline" on tsh & t4. A few months ago it finally showed up, high TSH, borderline low T4. GP wanted to 'monitor' it but I insisted on a referral to endocrinology.
I had my endocrinology appointment last week (I'll leave out how horribly inappropriate the consultant was as it's not relevant). Had a load of tests and not much consultation but understand that it's hard to consult without numbers.
Today the consultant rang me to tell me I tested highly positive for anti-thyroid antibodies but my TSH was normal. He babbled something about "you'll likely have problems in pregnancy but I guess you don't mind as you're on the pill" and "you could get a goitre but that's not a problem" (rather not if I can avoid it!!!)...... I asked if there were any treatment options and he said I'd have to wait until it progresses. I mentioned my symptoms and he said they're not related if TSH is normal. I suffer badly from anxiety and the brashness of his phone call led to me feeling really panicky and tearful.
Is that really it? I have to wait until I have a grapefruit in my neck, I'm 2 stone heavier and can't get up at all?? I've read a lot that early prophylactic thyroxine treatment can be really beneficial in this situation but how do I go about that from here if my gp and consultant are so dissmissive? Can anyone advise how much going private would be? I'd do it in a heartbeat if I could afford it.
Really appreciate any advice anyone can offer!