I have been bounced around regarding any diagnosis for some years and keep getting the same response of 'blood tests are normal' and 'just lose weight' [despite weight not being my only issue]
Today I looked through all my medical records and got a list of most the results on there [I had some carried out at a hospital that were not there] and I am just wondering if someone can help me make sense of them please?
August 2008 - TSH 3.5 Free T4 13.8 [no ref range]
April 2010 - TSH 2.3 Free T4 11.3 [no ref range] Notes saying borderline TSH and Low Free T4
May 2010 - Notes stating borderline thyroid but no follow up by GP
June 2010 - Notes stating possible small goitre
July 2010 - TRH test carried out [no other hospital notes for results]
September 2010 - TSH 2.1 Free T4 12.8
November 2013 - TSH 1.53 [0.38-5.5]
March 2016 - TSH 2.9 [0.27 - 4.2]
My November 2013 result seems odd to me but the GP said today that it's fine. They are really pushing for a diagnosis of PCOS despite all ultrasounds and blood tests coming back as normal and have referred me to an endocrinologist to confirm PCOS [seeing them next month]
I'm just not really sure what to think or what to do next
Many thanks in advance
Written by
neon-fairy
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Im sorry you havent had any replies yet apart from mine!
Im afraid i dont really know how to help you...sadly TSH on itself is not very revealing, we really need to see FT4 and if possible FT3 as well but going by TSH alone its hard to say what is going on also i cannot make sense of the results either.
Have you had any other blood tests e.g. estrogen, progesterone? Just wondering as you mention PCOS? I am also wondering how the endocrinologist will diagnose PCOS if there is no evidence? What symptoms other than weight gain are you having at the moment?
I was given InVita D3 25,000units/1ml oral solution to take twice weekly for twelve weeks. Treatment was stopped after 6 weeks as I became severely fatigued, my muscles ached and I gained a significant amount of weight
Symptoms currently:
Excessive tiredness
Cold hands and feet <suspected Raynauds not confirmed> and pins and needles/numbness especially at night
Insomnia
Dizzy spells / migraines / nausea
Constantly cold
Fine hair that falls out easily <my friend says I have doll hair>
Flaky/peeling nails
Restless legs at night
No periods due to contraceptive injection <prior were heavy, painful and irregular>
Anxiety
Mood changes for no reason
Back and leg pain / nerve compression
Trouble focusing
Losing muscle when exercising not fat <have a personal trainer so am doing the right type of exercises so this should not happen>
Palpations
At this point I'm ready to give up because my Dr has told me it's just all my fault
You certainly have some low thyroid symptoms but as you probably are aware quite a lot of the symptoms can be due to other problems too, you mentioned Vit D which was low, its a pity you had trouble with the VitD injection as that can cause a lot of symptoms similar to low thyroid but hopefully you have managed to get out and about in the sunshine? What about the pins and needles? Have you had your B12 looked at? Its just a thought as that can cause pins and needles. Would you say you feel better since having the contraception injection or did you feel better before apart from the heavy periods? When i was having heavy periods a long time ago i became anaemic, have you had tests for iron and ferritin recently? You also mention insomnia which can be caused by many things such as cortisol, progesterone and i also have been suffering with insomnia and i think i know whats going on with me...its usually prior to a monthly cycle and is inbearable, i really dont know how i make it through the next day but i have to i guess! Plus the low moods, bloating etc but my doc wont test my progesterone/estrogen levels as she wants to get the thyroid sorted for the moment. I am not in menopause but i think as im in my 40's that levels of estrogen/progesterone are now in decline which might be giving me lots of symptoms.
I think your doctor is wrong to suggest its your fault, your symptoms are very real. How can it be your fault!
Im not sure if any of what i have written is of any use to you but i do hope that you can work out what is wrong and if your doctor is making you feel that it is your fault then i think you need to change doctors to someone who is willing to work with you to figure it out.
I've tried changing Dr's but they all just want to diagnose on tests
I wish I could go out in the sun but it completely wipes me out <makes sense why a supplement would do the same>
I have the contraceptive injection due to the issues around my periods and have been for over ten years so I have nothing to really compare it to whether I feel better or worse. I am worse, but it wasn't specific to having the injection
The last time I had a B12 and ferratin check was in 2013 and it was normal around 400 and 73 respectively
When I moved Drs last year they concluded I wasn't anaemic but suggested I try not eating gluten. I would say that actually made me worse if anything, definitely didn't improve things
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