Some of you may remember I posted about a month ago about seeing a clueless GP (himself Hypo) who said he'd refer me to an Endo. I found one who sounded OK although his profile states "I do not prescribe or endorse non-conventional treatments for thyroid underactivity (e.g. animal thyroid extract)".
I have today received a letter from him saying that I was extremely borderline when I started treatment so the reason why I may not be feeling well is because I am getting side effects from the thyroxine.
TSH 3.50 (0.4-4)
Thyroid peroxidase antibody 1539.0 (0-50)
TSH 4.76 (0.4-4)
Free T4 15.1 (9-25)
NO thyroid rx (Dunno what this means?)
Thyroid antibodies 1384.5 (0.50)
In the meantime I managed to see Dr Skinner who was of the opinion I was hypo and suggested I was started on levo.
My latest results are: (I had taken my levo that morning)
TSH 0.33 (0.4-4)
Free T4 17.8 (0.25)
Free T3 3.7 (2.8-7.5)
This Dr (a Professor of Endocrinology) has said " to evaluate whether you do have a thyroid disorder or not it would be helpful if you stop all thyroid hormone replacements with immediate effect then when I see you in my clinic we can repeat the blood tests and evaluate fully whether any thyroid treatment is necessary".
To be honest I am speechless. It took me ages to be diagnosed and now he's telling me there's nothing wrong with me? I would dearly love him to be right but I know he isn't and am very disheartened that a Professor of Endocrinology is ignoring symptoms and relying on a blood test.
I don't see him till September and really don't want to go without my medication for that long.
I would be really, really grateful for some opinions and advice please as I really don't know what to do. Thanks in advance