I am a new member - I had no idea this oganisation existed but desperation led me to search the 'net and thankfully I found it.
I have had auto-immune hypothyroid disease for 30 years and never felt well and 'me' until I was given T3. My consultant said my body was not converting T4 to T3 - how would she know this ?
My GP stopped the T3 some years ago as I was having arythmia and palpitations - these did not stop and it was clearly not the T3 causing these symptoms which eventually stopped when I stopped another medication. My Dr refused to give me T3 again. I had little energy etc but coped, with my husband doing most of the work etc.
Now my consultant has reduced my T4 to 100 from 150 because my TSH was very low, T4 normal, T3 also low. I felt as bad if not worse than I did before I was diagnosed - unable to get out of bed - couldn't add 2 and 2, all the symptoms of undiagnosed hypothyroidism, so I have put myself back on 150 levothyroxine for now.
I do not feel over medicated on 150 so I was wondering whether other medications or anything else could be suppressing my TSH levels . I also have Addison's Disease and take T4 and 3 different steroids, hyrocortisone, fludrocorisone and DHEA, altogether first thing in the morning. My blood tests are always taken within a couple of hours of taking meds, hoping someone may have some answers as life is simply not worth living if I am forced to continue on 100 mcg per day