Low tsh: I have many run ins with my gp after... - Thyroid UK

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Low tsh

jodary profile image
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I have many run ins with my gp after thyroid blood tests which obviously are only done annually and my tsh is very low. I do medichecks myself and my tsh is very low my T4 slightly over range and my T3 low at bottom of the range. Am currently still working on my low Vit D and low folate but am still wondering why my tsh hasn’t risen given that my T3 is so low. If I go back a few years tsh did rise but remains low now below their acceptable range. Their range drives me nuts as they don’t care where in the range results are . It could go from the bottom of the range to the top of their range and they don’t even wonder why ! That’s not monitoring a condition correctly, any change should mean something but do they even ask how you feel ? My gp says they dose by tsh not symptoms as symptoms are common to a lot of things. How ridiculous!

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TiggerMe profile image
TiggerMe

Sounds like you need to ask for a referral to an Endocrinologist and get some T3 as above range fT4 isn't a good place to be long term

If you request the list from Thyroid UK you will hopefully find a knowledgeable one in your area

jodary profile image
jodary in reply to TiggerMe

Have been hypothyroid for almost 40 years and have seen many endrincologists in the past . Maybe before T3 was prescribed, I don’t know. But was never offered any as T3 was never tested in those days although it never is now. I was wondering why my Tsh doesn’t rise if my T3 is low as gps won’t do anything if it’s not raised. And that was my main question. I know an option is to source it myself but am not confident doing that as am on so many other medications.

TiggerMe profile image
TiggerMe in reply to jodary

TSH low due to high fT4... as we all know TSH is not reliable, I'd say your much safer self sourcing and monitoring than being treated by the NHS, have you thought of having a consultation with Roseway Labs?

jodary profile image
jodary in reply to TiggerMe

I’ve not heard of roseway labs. The trouble is as I have a form of blood cancer I find even my gp doesn’t want to see me and tells me I have to consult with my consultant who isn’t interested in my hypothyroidism and I’m in no man’s land. I’ve probably wasted a lot of years of my life not being treated properly for hypothyroidism before there were such things as this forum. It wouldn’t surprise me if my other health conditions were caused by incorrect thyroid treatment over many years !

TiggerMe profile image
TiggerMe in reply to jodary

Perhaps worth putting a post up to see it there are any others dealing with cancer, I can't see how having a lack of T3 can be good with any other health issue 🤷‍♀️

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