shawsAdministrator

We have to understand that it appears that most doctors are so uneducated re the function of the thyroid gland. Therefore, they believe 'old wives tales' even though they may originate from 'old men' who seem to make up stories so that we, the patients, feel they are looking after our welfare.

In actual fact we usd to be given doses of between 200 and 400 of NDT when no blood tests were invented then and the patients were dosed until they were well. Not according to the TSH. No, we don't get osteoporosis or heart disease, which we might develop if not on sufficient thyroid hormones or even develop more serious disease!

Ask specifically for a Free T3 blood test and this is the explanation, halfway down page.

thyroiduk.org.uk/tuk/testin...

Treepie

Yes happened to me ,with both GP and endo.As it happened some months later whilst on holiday in hot weather i felt much better. I have not been as good since the colder weather arrived and my balance which improved in the summer has detiorated again.

So i think i need more in winter but was denied.

Marz in reply to Treepie

Could you increase it yourself for the winter ?

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Treepie

Not unless i buy on the net. The practice web ordering system gives the date when i can reorder so i would run out before that date! Technology does have some drawbacks!

RedAppleAdministrator in reply to Treepie

Treepie, You are surely allowed to re-order before the due date when you're not going to be there at the due date - e.g. away on business/holiday or whatever.

I also found that by tweaking my re-order date by just a couple of days each time, I was able to gradually get things to the point where I was actually a month or more ahead with my stock of tablets. An essential situation to be in, in my opinion, so that in the event of a sudden supply problem, you are not left without your 'life sustaining' medication.

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BeccyD in reply to RedApple

I always get 2months at a time on my repeat, and I always have at least a months worth in stock. I order online, but it has to go through a doctor before I'm allowed to pick it up.. I have never had an issue getting any of my pills and have never been blocked from getting them. But I take so many different things which are all due at different time during the month as I'm a bit out of Sinc which my GP is aware of.

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Angel_of_the_North in reply to Treepie

Could you accidentally "drop a packet down the loo" and need some more???

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Treepie in reply to Angel_of_the_North

I have decided to soon give Thyroid S a try and will build up stock of levo in the mean time.

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Treepie

Are you doing the tweaking online Red Apple? The online system gives the date i can reorder .It give a couple of weeks or so leeway but if you use more you will run out before the next renewal date. Could say i lost a packet but not my style.

crimple

I would just say that I had lost my meds!! Threw them out by mistake!! whatever you care to try. The doc shouldn't be lying to you about osteoporosis and heart problems!!

galathea

Here is the paper showing that low tsh is not linked to osteoporosis. Take it in, make her read it.... Then ask for extra meds.... ncbi.nlm.nih.gov/pubmed/825...

X. G

Treepie in reply to galathea

I see that was published in 1993! Have i got that right?

Will shortly try NDT and will build up a stock of levo that way.

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galathea in reply to Treepie

Yes, its been known since 1993, but unfortunately, not by the doctors attempting to treat us.

Xx g

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eeng

You say "I was better when I'm slightly over". Does this mean your FT4 result was slightly over range or that your TSH result was slightly under range? Often doctors treat by the TSH results, which is the output of the pituitary, not the output of the thyroid. If they do that they can leave their patients undermedicated. You are not overmedicated until your FT4 and/or FT3 readings are higher than the top of the range.

If your doctor plays the "TSH too low" game then you need to play your own game. Next time you go for a thyroid blood test don't take your thyroid medication for at least 48 hours beforehand, so that your results show that you can have an increased dose. Also have your blood test first thing in the morning, without having eaten breakfast (you can drink water). The TSH varies throughout the day and is highest first thing in the morning.

Alternatively a lot of people just buy some in from abroad and top up the dose your doctor gives them with some more. If you do that you will need to play the game when it comes to your next blood test to keep your doctor happy.

Or you could find another doctor who treats by symptoms, not TSH.

BeccyD in reply to eeng

Hi,

for the first lot of bloods TSH was under, and T4 just in range but at the top end no T3 done

Second lot THS didn't change, but T4 dropped to mid range and T3 was mid range.

Got a test booked for the 12th as that's the earliest app I could get, so will try going 48 hours and see if it makes a difference.

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Angel_of_the_North in reply to BeccyD

So the first test was probably a better result - T4 was in range so no reason to reduce meds.

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BeccyD in reply to Angel_of_the_North

Nope, but we all know whT docs are like! The battle goes on!!

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