Graves Disease? What to do?: I have posted... - Thyroid UK

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Graves Disease? What to do?

I have posted several things to do with my weird blood test results and nobody has suggested it could be Graves until now.

I have very high T3 levels (22 when top of the range is 6) but my TSH is high to ie 6.8. But my T4 is low and I assumed that was because I take T4.

I have no symptoms of hyperactivity but I have reduced my T3 dose because I don;t want to add to them. However, I haven't stopped the T3 altogether because I felt horrid when I didn;t take any for 3 days.

I would go to the doctors but Im not sure they could do anything immediately, they have not been keen on my protocol of taking T3 (as most doctors aren't). I felt quite well until I got these results which I have been trying to act on but felt horrible. So as I said Im adding a small dose of T3 to help reduce T3 levels. More importantly I havent been to the doctors because I go to New York on Monday.

Any advice on whether Im a walking time bomb? My T4 is very low ie below range so I think that deflects a diagnosis of Graves but help!!


5 Replies

TSH remaining high suggests the possibility of either pituitary resistance to thyroid hormone (very rare) or some sort of pituitary malfunction, possibly a small tumour which is putting out excessive TSH.


I'm sorry you are in a predicament. Above you state your T4 is low and you assume it's because you 'take' T4? Or are you on T3 only.


Sorry, yes I meant T3. You see its even got to my brain now.


Numberone1, Very unlikely. Graves hyperthyroidism presents with suppressed TSH, high FT4 and/or high FT3.


I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.


Yes, thats what the person thought especially as the TSH and T4 are high and low etc.


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