Possible graves disease: Possible graves disease... - Thyroid UK

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Possible graves disease

Jjmd86 profile image
9 Replies

Possible graves disease

Hi I am new to all this and unsure what is going on so I'm hopping some of you will be able to help

I have just returned from the doc after discussing blood results that I have had done twice. They have both came back showing a low TSH of 0.03 but normal t4 and t3. He has now done a different blood test for graves disease and reffered me for an ultrasound on my thyroid.

What happens if I test posative for graves and if its negative will my TSH levels correct themself or will I need treatment eventually

Thankyou

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Jjmd86
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9 Replies
greygoose profile image
greygoose

'Normal' is just an opinion, and usually only means 'in-range'. It would help if you gave us the actual numbers: results and ranges.

That configuration of results could mean several things: Central hypo, Hashi's, or possibly Grave's. But, it does rather depend on where in the range your FT4/3 were.

So, your doctor is testing for Grave's - not surprising, because that's always the conclusion they jump to. Do you happen to know exactly what he's testing for, the name of the test? It should be TRAB or TSI. If he's testing for TPOab then he's way off the mark, because that's the test for Hashi's (although can be high with Grave's but is not conclusive).

If he's testing the TRAB/TSI, and it's positive, then you have Grave's, and the usual treatment is anti-thyroid drugs.

If that is negative, then he needs to test for Hashi's - known in the UK as Autoimmune Thyroiditis. If that is negative (although negative results are inconclusive) he should start thinking about Central Hypo.

Central Hypo is when you have low TSH, and low in-range, or below range, FT4/3. But, we'd be getting ahead of ourselves talking about that right now. Best to see what your actual results are, and what the new results are going to be. :)

Jjmd86 profile image
Jjmd86 in reply togreygoose

Thankyou so much. I didn't ask for the actual results of t4/3 can I phone the receptionist and they can give me these over the phone. I can't remember the actual name of the test he's done today something begining with a p. I'm sorry I should have paid more attention but ot all happened in a blur. Thanx for your reply

greygoose profile image
greygoose in reply toJjmd86

Yes, I know about those blurs. :) But, I can't think of a test that begins with P.

Best not to ask the receptionist to give you the results over the phone, it leaves room for error. Best to ask her to prepare a printout for you that you can collect at her convenience. (Of course, I'm presuming it's a 'her', it usually is, but I'm really not sexist. :) )

Jjmd86 profile image
Jjmd86 in reply togreygoose

Proxi test or something I think he said.

greygoose profile image
greygoose in reply toJjmd86

Doesn't ring any bells.

Jjmd86 profile image
Jjmd86 in reply togreygoose

Thyroid peroxidase antibody test

greygoose profile image
greygoose in reply toJjmd86

Oh lord. That's for Hashi's, not Grave's. It can prove you have Hashi's, but it can't prove you have Grave's. Or, it proves nothing at all.

Greekchick profile image
Greekchick in reply toJjmd86

This test also picks up Graves’ disease and is used in conjunction with the TRAb and Tg. Hope this helps. It can provide differential diagnosis for an experienced endo.

Hi Jjm

How are you doung now?

I would be interested to know the results that showed you had Graves please?

Thanks

Alps

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