My husband diagnosed with Graves about 6 months ago and has been on 20mg of carbimazole daily since then.
The results have been mixed. His cognitive function is better but his TSH levels have stayed very low (0.03) and although his T4 and T3 were beginning to drop from the original levels of 22.9 for T4 and 7.7 for T3 (September) they have now started to increase again.
In November T4 was up to 19.2 whereas in October it had been 16.5.
T3 was 6 in November but in October had been 4.7.
I am rather concerned that after 5 months on carbimazole the levels of T4 and T3 are still quite high even if within the 'normal' ranges. Concerend too that TSH levels are still so low.
The specialist said that if the next blood test didn't show improvements that he would increase the dose of carbimazole. He has been reluctant to do this because my husband has urinary problems and now has to use a catheter.
My husband also has mild anaemia and is having trouble gaining weight and has only gained 8llbs since August and is still underweight.
He has been extensively checked for any other health problems.
I am wondering if he is being given the correct treatment?
I read that Propylthiouracil (PTU) is an alternative that some people find much better than carbimazole.
I don't think that he has had his thyroid antibodies checked but don't know if this is necessary.
His vitamin D levels were found to be low some time ago and he now takes prescriptionn sypplements.
I would be grateful for any comments on the most appropriate type of treatment. My understanding is that carbimazole is usually given for 12 to 18 months in the hope that the thyroid starts working normally and that failing this surgery or a radioactive pill to knock out the thyroid is the next course of treatment.