Thiroyd or Thyroid-S for Hashimotos?

[millefleur40]

Has anyone switched from t4 or t4/T3 combo, to Thiroyd or Thyroid-S and how did you get on?

[Hypopotamus]

I'm on Thiroid which is 100% more effective (for me) that Thyroxine.

[millefleur40 in reply to Hypopotamus]

Did you just stop thyroxine one day and start thiroyd? Can I ask what dose you started on and when and how much you raised dose?

[Hypopotamus]

I went from Thyroxine to Liothyronine, and then to Armour (and then via ERFA to Thiroid). I did stop the T3 and just switched to the Armour.

But the consensus appears to be stop half your Thyroxine or Liothyronine, and replace it with one grain of NDT (60 mgs), wait a week or so and then drop the rest of the synthetic medication, and take another grain (60 mgs) of the NDT. Dose is of course different for all of us. You may need more or less. It's a case of observing your symptoms.

[millefleur40]

Thank you so much that's most helpful. Did you have any sideeffects from Thiroyd? It's interesting Thiroyd been better for you than the others. I suffer huge anxiety/panic symptoms, so anything that calms that would be hugely beneficial for me.

[greygoose in reply to millefleur40]

Have you had your adrenals tested? Because if they are low, no form of thyroid hormone replacement is going to work for you. Low adrenals can cause panic attacks.

As you have Hashi's, you should be aware that NDT sometimes makes Hashi's worse, for some people. They Don't really know why, but it's something to bear in mind. You might be better off with T4+T3, or T3 only.

[millefleur40 in reply to greygoose]

Hi Greystoke,

I've had adrenals checked twice with NHS in recent months and also privately through Genova (requested by Dr P) - all came back ok, despite my having all the symptoms of low adrenals. I'm low via d, despite being 1000 a day for last two years. Now upped it to 2000 a day on advice of nhs endo. I am currently on 50mcg of Levo and 13mcg tiromel (T3). Initially felt better but now gone downhill again. Tired, v anxious, headaches, sore neck and thyroid area actually seems to click in and our to the left of my throat! Had this before on and off, where if I moved my neck suddenly or yawned and moved it, something clicked out of place on throat area and it felt like cramp - v painful and distressing, until it popped back in! Told Gp and Endo and they had no clue what it was!

[millefleur40 in reply to millefleur40]

#greygoose - sorry predictive text

[greygoose in reply to millefleur40]

lol Bird, not monkey!

Well, the fact that you felt good at first, and then felt worse again, means you're on the right tract, but you need another increase. That's how it works. The body gradually gets over its initial euphoria and says 'hey, that was good, man, now I need more'. Have you tried a little increase?

How are your nutrients? Have you had your vit D, vit B12, folate, iron and ferritin tested?

[millefleur40 in reply to greygoose]

Had vits done recently, seem ok -oestrogen hormone was apparently v high, but endo nurse didn't mention that was bad - I beg to differ though. I have been on 100mcg Levo for 21 years. Bought tiromel on net and started on 50mcg Levo and 6.24mcg of Tiromel. Felt better quite quickly. Endo changed me to liothyronine, but made my I'll so back to tiramel and increased to 13mcg a couple of weeks ago. Feel awful now though.

[greygoose in reply to millefleur40]

Vits being 'ok' means nothing. Did you acutally see the figures? Best to ask for a print-out of your results so that you know exactly where you are.

Well, time for another increase in Tiromel. 50 levo and 13 T3 is a very small dose. Especially if you can't convert the T4.

[millefleur40 in reply to greygoose]

After you mentioned via results, I dug out ones that I got Gp to do on 26th June. The Gp never contacted me with results even though Tsh (22) and cholesterol (6.3) were bad. I wasn't worried at the time because I had seen Dr P and was having a five day break in meds, so that screwed up thyroid results.

Serum Ferritin was 30 ug/L (13-150)

Serum B12 214 pg/Ml (180-914)

Serum folate 3.0 ng/Ml (3.1-20.0)

D3 49 nmol/L 30-70 borderline insufficient.

Gp and Dr P ignored these readings and nhs endo only pointed out the vit d. Recent test on that was 70 and ive raised vit d3 support from 1000 to 2000 a day in past three months to get up to that.

I assume rather than normal as results are in range I'm probably low on those vits?

[greygoose in reply to millefleur40]

You certainly are!

Vit B 12 is optimal at 1000. Yours is dangerously low. Anything Under 500 can cause irreversable neurological damage. I would advise you to take about 10 000 sublingual methylcobalamin for a couple of weeks, to bring the levels up quickly, then reduce to 5000 daily for a few months. And take a good B complex with it to keep the Bs balanced.

Find a B complex with methylfolate, and that should bring your Folate up. That's below range! It's disgusting that nobody said anything about that! But had the doctor prescribed, he would have given you folic acid - the cheap one! - methylfolate is much better.

Ferritin needs to be at least mid-range, so best to supplement that. I can't advise you there, I know little about iron. But if you post a new question, our iron experts will reply.

I think if you manage to optimise these nutrients, a lot of your symptoms with disappear, and you'll feel a lot better!

[greygoose in reply to greygoose]

Oh! Forgot to say, Don't worry about the high Cholesterol. That's because your FT3 was so low. It's not important, anyway - although doctors think it is! If you have high cholesterol, you're Lucky! Mine is too low...

[millefleur40 in reply to greygoose]

Brilliant thank you greygoose. It is disgusting, why bother doing the tests if they don't look at the results. 'in range' is dangerous to let go. Yes, I wasn't too worried about the cholesterol being high. Never been tested before and thought it would go down when thyroid sorted. I told endo gp had not given me any advice on blood results. When he saw cholesterol he said 'didnt they prescribe station's. My snarled I'm not taking statins, put him off going down that track! If it isn't antidepressants or acid suppressants it's statins they are trying to force on you. Is sure they get paid to prescribe certain meds, even if its not appropriate and they are addictive.

[greygoose in reply to millefleur40]

Good for you! You Don't want to go down that route!

I think they just do the tests to keep the patient quiet and make it look as if they're doing something. They Don't know how to read the results, and have no idea about nutrition. So...

[Klagh in reply to greygoose]

I just read yesterday that B12, D3, and ferritin levels (and really all the vitamin and mineral levels, including selenium, magnesium) MUST be optimal for NDT to work.

[greygoose in reply to Klagh]

Yes, that's right. And for Levo and T3 to work, too.

[health2015]

Hi really fed up. I am currently taking Nature thyroid, and seem to be doing ok. However I'm struggling to keep up financially, and wanted to know if you could pm me the details of your supplier for thyroid & thyroid S.

Mazamoomoo

[millefleur40]

Yes looks that way, thyroid tests were free T3 3.7, free t4, 8.2, TSH 13.3 on 27th Aug. Not great. Endo doesn't recognise that I take T3 because it's not liothyronine. Nhs don't seem to want to prescribe you above 10mcg of it. They give you a trial starting at 5mcg twice a day with lots of levothyroxine to go with it and if you don't feel better, that's your lot apparently. No raising it higher and if you utter the words can I just use T3 alone, I think they strike you with a bolt of lightning ⚡ :-S

[greygoose in reply to millefleur40]

That's because it's expensive... Sshhhh... lol