No wonder I've been feeling worse than ever. My TSH was through the roof at 266 and my T4 was ridiculously low as well, can't remember exactly what it was, I think I was so shocked with the 266 that the rest didn't register, my doctor was like "you poor thing, I'm surprised you're still walking!". Was also told today that my heart is only working 30%, no wonder I feel like crap. Could they be connected? This is all after being on NDT for about 9 months, granted I skipped 2 weeks of NDT when I was on holiday 2 weeks before my blood test, then started it again, but could this by why it was so bad? I've missed doses like that before and it's never ever been this bad actually, even when I've not taken my thyroxine for weeks, so I don't think that's why, I'm thinking something has dramatically changed. Maybe it was the Thyroid-S? Got a dodgy batch? I don't know!
Anyway, I'm now trying T4 and T3 again, (I say again because I tried it for 2 months and it made no difference but of course that's probably not long enough) 100mg of T4 and 30mg of T3 a day. Seeing the endo next month (who is known to be crap, surprise surprise) and I wrote him a letter asking to check my adrenals and iron, I think I may have actually begged him in fact. We'll see what he's got to say next month.
Anyway, just wanted to share and vent! Feel like giving up! Anyone ever heard of TSH being this high before?