gut problems: Hi I have been on Levo since 200... - Thyroid UK

Thyroid UK

141,243 members166,489 posts

gut problems

geffers profile image
8 Replies

Hi I have been on Levo since 2009 but last year ask to see Endo at my local hospital due to bouts of fatigue she suggested I stop taking Levo in order to get accurate bloods T3 T4 TSH I was reluctanat to do this but in June last year went on holiday and decided to stop Levo.I was ok for 2months but from late August to December started to feel awful. Symtoms were blurred vision,eyes watering ,aching muscles, fatigue,lack of concentration poor memory, a feeling of being elswhere I felt I would pass out a couple of times. I went back on Levo in the January this year and got back to some normality but during the period of no Levo bloods were taken and deemed to be normal by Endo so WHERE DO I GO FROM HERE!!! The one thing I did notice is my stomach problems improved but now is back to feeling bloated,gurgling inconsistant stools, wind, burping,back odour etc.

Can anyone provide advise as I feel medical profession do not take these problems seriously.

Written by
geffers profile image
geffers
To view profiles and participate in discussions please or .
Read more about...
8 Replies
ianessex profile image
ianessex

Hi,, I too have been having an awful time with stomach issues lately,, I have recently tried switching to another brand to see if that helps, without being to graphic, I can deff tell a difference between the two brands, and my missus is far happier ..lol... Perhaps your having issues with one of the fillers ? And why your endo said to come off meds I'll never understand ..

geffers profile image
geffers in reply toianessex

Hi Ian

Can you tell me what the two brands are and which one you switched to and also are they prescribed by your GP.

MANY THANKS

ianessex profile image
ianessex in reply togeffers

Yes of course,, I was on mercury pharma thyroxine and switched to actavis,, to be honest I don't like either,, it's like choosing between the rubbish and the trash but they have different fillers, there's also wockhard but that only comes in 25s ,, it's worth a go,, plus as marz said, normal means nothing,,

Marz profile image
Marz

In your thread a year ago - it was suggested you had other tests done - Ferritin - Folate - VitD - B12. Did you have them done and what were the results ? Also can you post your latest thyroid results with ranges....then others will come along and help.

Are you still on just 50mcg ?

Never accept 'normal' from your GP. Normal is an opinion - NOT a result. Where you are in the ranges is critical and most of all how you are feeling....

geffers profile image
geffers in reply toMarz

I am returning to GP in order to get bloods taken i will ask for all you suggested but do I need to ask for any others to be included

Marz profile image
Marz in reply togeffers

You also need to have a full thyroid profile done - TSH - FT4 - FT3. Can you have them done privately - in case your Doc or the Lab refuses the FT3 test based on costs and when the TSH is in range :-(

Many people cannot tolerate levo as one of the side effects is gut issues- it is clearly listed on the patient info in the pack.

The problem is that the NHS will not prescribe anything else.

You could do what many here have been forced to do through nhs negligence- self medicate with ndt

geffers profile image
geffers in reply to

What is ndt and how do I get it

Not what you're looking for?

You may also like...

Levo problems.....?

Hi all. I'm having real problems with levo. At first the issues were prickly heat sensation,...
Olsbird profile image

NHS labs refusing thyroid antibodies test ordered by doctor

I went to the doctors last month after suffering from worsening tiredness, fatigue, brain for,...
koneko profile image

Anyone on add-back therapy for Graves?

I have Graves and I’m on 2.5mg Carbi a day. Just had some Blue Horizon bloods showing rock bottom...
Coconutty profile image

Increased dose of levo causing tummy problems - help please!

Hi all, I'm new here. (Sorry in advance for the very long post!) I'm 32 and was diagnosed with...
JessD86 profile image

Help- on T3 but want to raise my Levothyroxine?

Hi there, Well I'm doing ok but not brilliant. I am not yet fully medicated so still raising. I'm...

Moderation team

See all
PurpleNails profile image
PurpleNailsAdministrator
SlowDragon profile image
SlowDragonAdministrator
Jaydee1507 profile image
Jaydee1507Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.