Well I'm doing ok but not brilliant. I am not yet fully medicated so still raising.
I'm now taking 88.5mcgs Levothyroxine and 15 mcgs T3 it's taken 10 months to get this far.
My last bloods were
TSH - totally suppressed
FT4 9 (12-22)
FT3. 5 (3.6-6.8)
What I need to do is raise my Levo. I'll explain.....
I've had a lot of problems raising levo in the past and have to do it very slowly because of it triggering psychosis.
Ideally I would like to raise my levo because I need more stability in the bank. Safety really. But taking T3 too is confusing me. ( not physically!!)
How do I do this?
Do I just keep raising my levo? And leave my T3 dosage the same. I am still really under medicated.
The awful symptoms have disappeared now so clearly I'm on enough men's to get rid of those.....they were
Minor seizures when sneezing
Loss of swallowing
Loss of speech.
Things have been bad. Terrifying at times.
I can only do 12.5 mcgs of levo every 6 weeks without hitting problems.( psychosis)
I have a brill endo who diagnosed tertiary hypothyroidism and put the T3 in because he couldn't bear how painfully difficult it was for me to raise the levo and just wanted to get some meds in to me quickly. At one point he was considering putting me on a T3 drip but thankfully it hasn't come to that.. He's a godsend.
But now I feel ready to raise the levo again. Bit by bit. I can't see my endo for ages and he is very happy with me having a go raising the levo. Whatever it takes....he says. I'm very lucky I know.
So how do I do this?
I don't want to lower my T3 meds because I'm frightened the awful symptoms will come back. My endo wants to see my FT3 at the top of the range or at least high enough not to cause hyper symptoms.
I tried to raise my T3 recently but went a bit hyper. It was just too much too soon that's all. I can only raise my T3 by 5mcgs every 4 weeks otherwise psychosis problems kick in too.
So as you can see. I'm tricky.
But I DO want to raise my Levo for safety reasons if nothing else. I am about as overt as it gets. Full blown myxoedema. It frightens me and now I'm crying! ?..note to self....MUST STOP IT!!!I
According to my endo. Treating the hypothalamus is tricky because you really can only go on how the patient feels.
So how do I do this? Sorry to bother again. X