I was diagnosed with an underactive thyroid and Hashimotos in 2010. I have not done great of T4 and never felt really well. Anyway i was sent to see an endo a couple of months ago due to having flushing episodes, my last bloods showed raised TSH and low T4 even though i was having hyper symptoms. Endo told me to take 100 of levo.
Latest visit to endo he told me that i should come off levo completly as i was not feeling any better on it. He continued to say that my thyroid bloods have never really been that bad and that i have been boderline underactive. I was so confused with what endo said because i was diagnosed with an underactive thyoid and the reason that my bloods were not that bad was because i was put on levo. I did say to him that because i have an autoimmue thyoid disease surely my thyoid gland would be destroyd and not producing any thyoid hormone wo which he replied who said this happens.
I feel very confused about my endo visit and everthing i thought i have learnt about thyroid disease is now questionable.
I beleived that thyoid disease was a life long condition which required medication regardless if i felt well on it or not. How can the endo take me off it and replace it with nothing.
Anyway he realised i was not happy about coming off it and said to reduce it to 75.
I felt like i had gone mad and bascally for 5 years i had been taking levo when i didnt need to. The reality is of course i do need some thyroid hormone medication as without it i would become more unwell. I know this so why does the endo not know this.
When i was diagnosed in 2010 my T4 was 10.2 and my TSH was 13.5 and antibodies were 1000 plus.
If your reading this and this has happened to you could you let me know out it played out..i don not want to stop levo and be very ill and of course i do not want to take it if i dont need to.