Hi all, I'm new here. (Sorry in advance for the very long post!)
I'm 32 and was diagnosed with Hashimoto's in April, after I told my doctor about many different symptoms but the most recent was agonising joint pain. After initial tests I was referred to an endocrinologist and had ultrasound and more blood tests (Enlarged thyroid gland and TSH 9.48). I was initially put on 37.5mcg of Levothyroxine for 2 weeks, increased to 50mcg for 6 weeks.
After about 2 and half weeks on Levo I started feeling amazing and like I was back to normal. But then about 2 weeks after that I started to get the symptoms back, including the dreaded joint pain! I also noticed that I was having more frequent and (sorry TMI - watery) BMs than previously. I put this down to the Levo trying to sort out my previous issue of constipation.
I had more tests after the 50mcgs for 6 weeks which showed still slightly high TSH (3. 46). My endocrinologist increased my dosage to 62.5mcg (half 125mcg pill). On day 2 of the increased dosage I began to have very bad stomach pains and what felt like constant diarrhoea and throbbing headaches. I put this down to the lactose in the higher dose pill (I'm lactose intolerant) so I emailed my Endo who said there is less in this pill than in the 50mcg so it can't be that.
The next 2 days instead of taking Levo first thing in the morning and then waiting an hour to eat I ate breakfast and then waited 2 hours before taking Levo. My tummy problems seemed to go away, apart from a slight nauseous feeling occasionally, feeling and look of being bloated, and the headaches remained.
I thought maybe I had indeed had a stomach flu and it had nothing to do with the Levo so I went back to taking first thing in the morning. On day 2 again my tummy problems are back.
I'm in the middle of finishing a dissertation due in two weeks and this has got me nearly in tears. Do I stop taking the Levo first thing and instead take it 2 hours after eating? Or should I go back to 50mcg? In both cases my Hashimoto's symptoms may return with a vengeance and that is really not helping - brain fog is the last thing I need right now.
Or could I take a Lactase pill before taking the Levo (even though my Endo says it's not the cause...)
I'm sorry again for this long rant. Does anyone have any tips for me?