Soo tired: Feeling sooo tired,cut Atenonlol down... - Thyroid UK

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Soo tired

59 Replies

Feeling sooo tired,cut Atenonlol down to 25mcg.Morning and night.Feel terrible. Still no appetite, I force myself to eat,just had a mandarin ,wonder how long before the extra dose of thyroxine will kick in.Am forcing myself to do housework and go for walk.Feel better after walk but still tired.Will I ever get better.Also got constipation. Don't want to take Atenonol really,have just read it can help if you have emphasema as well.My oxygen level was down to 86%.So don't really know.I just know I am fed up. Not feeling as cold today so maybe thyroxine is starting to work.

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59 Replies
Heloise profile image
Heloise

Are you raising your dose of thyroxine, Jean? Remember it takes at least two weeks to raise the blood level to the new dose. Can you go to 100 mcg. per day? Have you been under medicated for all these years?

in reply toHeloise

Was wooried to go too quickly.Was thinking 75,Mon,Tues, 50 Wed, 75 Thurs Fri. But feel sooo tired.Do you think I could go quicker. That works out at 450 mcg. Per week He had put me down to 375.mcg a week. Only did that a couple of weeks.Felt so tired.

Heloise profile image
Heloise in reply to

Mjean, you have to take all these recommendations and follow through. I'm not sure what makes you say you had antibodies when you raised to 100 but if that is true, getting your ferritin, iron, folate and vitamin D raised may help you more.

The AIC measure glucose for the last three months and you are slightly over so this is another problem looming. It's no wonder you feel very punk. I would ask your doctor for a high dose vitamin D but if he won't you must take 5,000 i.u. at the least with K2 which sorts the calcium as Marz said. If you do these things I think you will have much better results. Best wishes!

in reply toHeloise

You mean I am getting diabetes.Will see if I can get some K2.

Heloise profile image
Heloise in reply to

You have a glucose problem and this sometimes stresses your adrenals. It could be too many refined flour products or possibly even gluten. Eat as many whole foods rather than processed foods as you can.

youtube.com/watch?v=nZ_CP7l...

in reply toHeloise

Just be to Docs,he said my sugar was alright.Changed my blood pressure medication to physioten. Will see how I go with those.Cant do with the Beta blockers.Just read Beta blockers can put you sugar up.

Heloise profile image
Heloise in reply to

Mjean, that is probably true. The problem is that taking all the extra chemicals harms thyroid function and/or causes other problems. Usually the answer is to correct thyroid function and then possibly rid yourself of other issues. I'll post a video if you have time to watch.

in reply toHeloise

Yes I will watch.Took 1 physiotens ,not slept al night because of stomach ache.Cant take blood pressure pills.All of them give me side effects.

Heloise profile image
Heloise in reply to

Don't worry about the blood pressure pills unless you are very, very, very high. Jean, it's rare that 75 mcgs. of thyroxine is enough for ANYBODY. When you raise to a dose your body likes, your blood pressure, heartrate/pulse and lungs should work well. Do you have any other disease conditions besides thryoid?

in reply toHeloise

Emphasema,which I take spiriva and Asmol for.Blood pressure was very high.I know it is stress.If I get my thyroid right I know I will feel better.

in reply toHeloise

I watched the video,very good.

Heloise profile image
Heloise in reply to

I hope you can take the right dose of thyroxine. I don't understand why you are afraid UNLESS you are so weak and need to rest your adrenals in order to be able to utilize a higher dose of thyroxine. Sometimes that DOES happen and you have to get treatment for your adrenal failure.

In that case when you try to raise your thyroxine too high, you will feel hyper or T4 toxic.

in reply toHeloise

I thought you had to titrate slowly.

in reply toHeloise

Blood pressure was 160/100/70

Told to stop Atenonol yesterday by Doc.Said I hadn't been on it long enough to cause problems.

Been for walk.

Now 143/89/84

Can't take Physioten,was up since 3 am,stomach ache and feeling hot.

Put a nitro - Dur patch on.I will just have to stick it out today.Dont want to take Atenonol.

Heloise profile image
Heloise in reply to

It is worse to go too slow: Although this is talking about NDT, (one grain equals 100 mcg thyroxine) the same goes for thyroxine from Stop the Thyroid Madness Now website:

STICKING WITH TOO LOW A DOSE. For a myriad of reasons, this happens often for those on NDT or even T3-only and will make you feel even more hypo due to feedback loop suppression. Have one of these been true of you?

a) being held on a starting dose longer than two weeks (such as one grain, 1 1/2 grains or less)

b) being bound by the directives of a TSH-obsessed doctor. The TSH lab test only keeps you sick.

c) failing to get a raise of desiccated thyroid until the “next labwork”, which can be weeks and months away

d) following an inaccurate Synthroid-to-Armour type conversion equivalence chart.

e) being afraid to go higher!

in reply toHeloise

So ,will it be alright for me to. Take 75 every day from now?

Heloise profile image
Heloise in reply to

YES see how it goes for a week

in reply toHeloise

I did used to be on 75 mcg.every day 5 years ago.One Doc put me up to 100 mcg. A day and I got antibodies.I feel as though I have been under medicated for a long time.

Marz profile image
Marz in reply to

So where are your levels of B12 - Iron - Folate - Ferritin - VitD ? Are you converting the T4 into the Active T3 ? Are you still allergic ?

in reply toMarz

B12 663. S fol>45.0. Iron 9 (5-30) Ferritin 30 ( 30-500)

VitD 44 (50-250)

What is HBAIC 5.7 (4.4-5.6) HBAIC (IFCC)39 (25-38) eAG 6.5

Am taking loratadine before thyroxine in a morning.

Marz profile image
Marz in reply to

Your B12 is reasonable - are you supplementing ? Ferritin needs to be around 80/90 so supplementing with Iron and VitC would help to increase this. VitD also too low - am assuming the measurement was in nmol/L - so divide by 2.5 to bring it to ng.L which is around 17. So you need at 5000 IU's a day along with K2 to ensure calcium goes into your bones.....see link below which illustrates the dose required according to your results.

grassrootshealth.net

The HBA1C is the test for sugar/diabetes I believe.

in reply toMarz

Am taking Spatone,vitD tablet,fish oil daily to get my levels up

Marz profile image
Marz in reply to

What amount of D are you taking ? K2 is a vitamin - you can buy D Sprays that contain both D and K2. VitD increases the level of calcium in the blood - and this needs to be re-directed to the bones. VitD is fat soluble so needs to be taken with a good fat.... so perhaps it goes well with the fish oil :-)

in reply toMarz

Ostelin vit D 1000 IU

Marz profile image
Marz in reply to

Not enough - see my post above :-)

in reply toMarz

What is K2

Marz profile image
Marz in reply to

K2 is a vitamin needed to direct calcium into the bones. VitD improves the production of calcium in the blood. Not good for heart problems....

Marylyn profile image
Marylyn in reply to

Your Vit d & iron are way down that would make you tired as well as breathless dropping O2 sats. drs do not recognise breathless with anaemia .

in reply toMarylyn

Am taking iron and Vit d supplements now.

in reply toMarz

TSH was 3.04 (0.50-5.00) Free T4 18.7 (9.0-25)

Free T3 4.7 (3.5-6.5)

Marz profile image
Marz in reply to

For someone on T4 your TSH is still raised. Many people feel better with a result of 1 or under. Your T4 seems reasonable but the FT3 is low. You need good Ferritin levels to improve the conversion of T4 into the Active hormone T3.....

Low Ferritin - stored iron - will cause you to feel tired :-)

Marz profile image
Marz in reply to

drmalcolmkendrick.org/2013/...

Perhaps this article will be useful :-)

faith63 profile image
faith63 in reply to

stopthethyroidmadness.com/b...

read this information on high bp.

Have you been diagnosed with Emphysema?

100 levo did not cause antibodies, i am sure..

I think you need a thyroid medication with t3 in it. You have a ft4 higher in range and ft3 lower in range..you are not converting well.

in reply tofaith63

I did reply,don't know what happened to it.Yes I have just read it.Very interesting,will my thyroid specialist know about it.I will ask him on the 5th June when I go to see him. Maybe with the increase in Vit d it will convert better now. Thank you

in reply to

Yes I have been diagnosed with emphasema,own fault for smoking.I think it is also in the Genes.I have posted before one of my sisters died when she was 69 with it ,her son 59 her granddaughter 33 as well.

faith63 profile image
faith63 in reply to

i'm so sorry. i was a smoker too.

in reply tofaith63

I don't think I am so bad,it is the bottom of my right lung which is gone.By stopping 50 years ago I have not been too bad.I use Spiriva every day.Cant take any of the other steroids etc.Use Asmol.Has been good, flares up when thyroid is playing up.Have always been active,played lawn bowls for over 30 years.May be able to start again when I get my thyroid sorted.Have really missed it.

faith63 profile image
faith63 in reply to

Have you checked to see if spiriva would hinder absorption of thyroid meds?

in reply tofaith63

No,just checked BP jumped up to 179/99/72

Gismo333 profile image
Gismo333

Constipation and lack of appetite together with exhaustion equals hypothyroidism. Your thyroxine is not working and if you are being guided by blood tests I can tell you that these are inaccurate. Change your doctor and find one that will put you on natural thyroid it add T3 to your T4 beguiled by symptoms and morning pulse. If you can't find one get Dr Durrant Peatfields book The Great Thyoid Scandal and Hiw to Survive it. It is a self help book.

in reply toGismo333

I don't think you can get it in Aus.

Marz profile image
Marz in reply to

Try Amazon....

recovered7 profile image
recovered7 in reply to

Hi Mjean, are you in Australia ??

in reply toGismo333

Do you mean morning temperature?

Gismo333 profile image
Gismo333

No beats per monutebeforegetting out of bed. Count how many beats over 30 seconds. Please mail me lynthip@aol.com

in reply toGismo333

My blood pressure was 141/78/76 when I woke up at 5.30. Now 6.15 and it is 144/86/68. Didn't take beta blocker,they zonk me out too much.

Gismo333 profile image
Gismo333 in reply to

Hi it's your pulse I am interested in. Do it in the morning before getting out of bed. 30 seconds x 2

in reply toGismo333

Wasn't that pulse 76 .

sara747 profile image
sara747

I'm so sorry of your troubles. Been through the mill myself.

I'm suggesting you look up bio energy healing (or healing bio energy) find a therapist and they can work on you remotely which will get your body back on healing and recovery path naturally. The first thing you will notice is energy and uplifting happiness. Immediately. It's works instantly.

Four sessions (half hours) have been known to reverse conditions that are pronounced incurable. Each heals at his or her own rate.

My best advice. Having tried all other routes. Even sorted Michael flatly - Hope you follow it.

greygoose profile image
greygoose

Have you tried taking magnesium for the constiptation? You're probably low in magnesium - most people are!

Yes I took 4 magnesium aspartame yesterday.I have just woken up.Didnt take beta blocker last night.Just taken antihistamine at 5.30 and 50 mcg. Thyroxine will have coffee later.Also took Spatone,Vit D and fish oil yesterday. Was feeling a bit better and actually enjoyed my tea,roast beef ,chips,mixed vegetables and gravy.Thank you everyone for your help and concern.Hopefully I am turning the corner.

Gismo333 profile image
Gismo333

Can you please tell me how much T4 you are taking sorry, I don't seem to be getting all the info on this forum. Am I right in thinking its 50 mcgs? Apologies if I have this incorrect but if that's all you are on then there's your problem. Taking too little thyroid hormone actually shuts the thyroid down. You have to take what you are producing and more on top of that. Doctors just don't understand how the gland works. Please let me know on here or you can mail me for more information at lynthip@aol.com. no wonder you are feeling so bad. You won't convert that to anywhere near the T3 the body needs to function. your receptor sites on the cells will be starved and your metabolism will drop. It is vitally important that the body gets sufficient T3 through the conversion of T4 to T3 or through taking T3 only or natural thyroid hormone.

in reply toGismo333

Am putting it up myself to 75 mon Tuesday. 50 wed.75 Thursday Fri. 50 Sat,Sun.Specialist had told me to cut it down to 50 every day except Tuesday and take 50. I couldn't function.That was when he thought I had Afib.not got Afib.

Gismo333 profile image
Gismo333 in reply to

Oh dear please find a good doctor. Afib can be caused by unconverted T4. I have come across so many people like this. It's going nowhere. Can you get to Dr Heetoghe in Belgium if not please email me and I will give you some more information

in reply toGismo333

I live in Australia

in reply toGismo333

Where is your email address?

helvella profile image
helvellaAdministrator in reply to

Send a private message - it is strongly advised not to post email addresses on the forum.

Gismo333 profile image
Gismo333

Here it is <email address>

[ admin strongly advise people not to post their personal email addresses. Suggest you send a private message to anyone you wish to tell. ]

Heloise profile image
Heloise

youtube.com/watch?v=T_Re4ja...

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