Really need some support/advice from people about what to do. I got diagnosed with an underactive thyroid last December which I feel hadn't been picked up for ages due to my TSH being low end of normal (1.2) with free T3 of 2.1 (3-7) and free T4 of 10.4 (12-20). Started on 50mcg daily and after 4 weeks felt like my life had turned around. Went up to 75mcg with Doctor's approval and continued to feel better.
Since then, I basically upped my medication progressively by myself because I wanted to feel better and better and wanted to lose weight. Over the next few months I upped to around 200mcg a day. Without any professional input.
Over this time I have had blood tests. My bloods on 50/75/200 mcg are all the same. I.e low TSH of like 0.03 and free T3 of anywhere between 5-6 (ref range 3-7). So my T3 levels are not increasing at all in response to my self-medicated increase dose. My bloodwork is still exactly the same.
But, at the moment I feel angry, irritable, frustrated and exhausted. I'm not particularly experiencing other symptoms of overmedication ie I'm not losing weight (but then I would say I am eating more). I don't have very fluid or regular bowel movements and I don't have the shakes. I just feel uncontrollably angry and I keep lashing out.
I know perhaps my approach to medication is at best an attempt to control my symptoms and feel as good as I can and at worse an outright abuse of thyroxine. I have also moved around quite a lot and am now with different GP's (I've seen 3 different ones since I moved) and they don't have any info from my last GP surgery so they kind of know that to some extent I upped medication myself but they do not know the extent. That, combined with my free T3 led the last person I saw simply suggest to reduce my Thyroxine to 175mcg.
I am confused about a few things. I am still confused about why my TSH never came up originally in response to such low free Thyroid hormones. I am confused about why, despite taking basically 2-3 times my prescribed dose, I experience no rise in free Thyroid hormones. And why I feel some mental manifestations of overmedication but no clear physical ones.? Has anyone else had experience of any of these things?
I took this all to another GP last week (on Thursday), and also brang up that a year ago I had an adrenal stress profile done and my cortisol was basically double what it should be. This had never been followed up (I got the test done privately and basically got turned away form a GP when I asked for a referral to an endo because of it). This GP took it more seriously however, referred me to endocrinology and I got a call on the Friday (the next day) from the hospital saying they wanted to see me first thing tomorrow due to the cortisol results (I think they are going to do an ACTH stimulation test)
Basically, I'm confused, I don't know how much of what's going in is physical or mental. And I am really confused about what my Thyroxine situation is and how best to remedy it. Do I begin to lower my medication dramatically? Is it because I'm taking far too much that I'm feeling so terrible? I have to say I felt the best on this journey when I was still taking around 50mcg to 75mcg. It was impatience and ridiculousness on my part that took me on the path of medicating myself, for no real reason other than chasing feeling amazing.
Any advice on any of this would be so helpful.