I have been lurking for a few days and have now decided to request some information if thats ok.
Please forgive the lengthy introduction and bear with, but I think providing some background information maybe useful. Hopefully you will stay awake until the end!!
I am 51 years of age and until about six months ago was fit and well with an active lifestyle, running ,yoga and weights to keep fit. During the last few months I have gained two stone in weight which I largely attributed to it being winter as I do tend to suffer a bit from SAD syndrome and had no energy to do any exercise. I have had significant lower back pain for some months and attended the GP with a view to discussing this further .I was also suffering with restless legs for the preceding three weeks which was interfering with my sleep and subsequent ability to do my job. The GP agreed that it could possibly be my thyroid and arranged for blood tests. I was referred to a chiropracter for my back issues who suggested that I may be suffering from adrenal fatigue.
My blood tests came back as borderline and the GP suggested we repeat them in 3 months. By April my tsh was 47, T4 less than 2 and antibodies were 1300. I was by this time feeling very unwell. My sleep was severely affected as I could only sleep for 15 minutes at a time before being jolted awake by what I think may have been cortisol ( I may be wrong- the feeling was similiar to being wired on caffeine). I had by this time started doing some research of my own in an effort to take control of my health and gave up gluten thinking that I may have 'leaky gut' syndrome.
The GP rang me to give me the results and commenced me on 100 mcgs of levothyroxine with a prescription to be collected the folllowing day. I have since seen my own GP who sadly seemed rather dismissive and suggested that my feelings of still not feeling ' right' whilst on the levo were something which I would probably have to get used to !! When I described the feelings of being wired and unable to sleep she inferred that it was due to anxiety. At this point I was starting to feel quite low, could hardly walk and was sleeping 13 hours a day some days, and not sleeping at all on other nights due to being wired.
I then ascertained that taking the levo at night suits some people and lo and behold- it was like a miracle!!
It has taken me the last three weeks to start to feel a bit normal ish again. Although I still get days when I have lots of pain in my muscles and joints, and sleep the whole day long. Also, my skin is dry as sandpaper, I still feel the cold, and have no energy to do any exercise but at least I can walk the dog which is something I could not do a couple of months ago.
While I know that it is early days and I should be grateful that I do feel significantly better, there is no consistency at the moment.
I have to go back for bloods in two weeks so I am trying to arm myself with as much information as possible both to stand up to the GP as well as doing what I can to support my own health. I have a lot of living to do before I will be incapacitated by this gift that keeps on giving ( hashimotos to you and me!!)
I take selenium, magnesium, holy basil (at night if I cant sleep) evening primrose and did have L-glutamine caps but read somewhere that they are useless as it is the powder that is needed.
I am gluten ,sugar and dairy free, drink kombucha for my possible gut issues and eat a very healthy diet. The only thing which I need to do is give up the alcohol for a spell to see if that helps me lose weight although I have lost 3 pounds in the last two weeks by doing the 5:2 diet.
My questions are thus.
is it worth me exploring the addition of some thyroid support supplements as advocated by some members? If so, which ones?
I have looked into B12 and my GP is checking my levels in a couple of weeks. What are considered to be normal levels?
Does T3 get checked routinely or is this something which has to be specifically requested? When I asked my GP at my last appointment she told me that they check it but they dont report on it!!
If I take my Levo at night, do I miss out the dose before my 9am bloods i.e. the night before and just take it after my bloods?
Will the joint pain improve if I take a thyroid supplement?
My blood pressure has increased since having hashimotos. Is this normal?
thats all for now. I apologise in advance for the lengthy post . It just seems that thyroid disease should be renamed to TOTAL BODY COLLAPSE!!
Thanks in advance!!