Hi everyone. I finally got a diagnosis today of hashimotos after 27 years of questing for an answer. It's a shame it took so long. My mom also has it and I found out my three maternal cousins do as well. I also have had very low vit d for at least several years (13-23). Megadoses don't hold. It just drops again.
my antibodies test was normal, but my ultrasound showed moderate inflammation and that is the way it was diagnosed. i have a lot of questions. After being treated as a hypochondriac and told I have a somatic disorder so many times, I prefer to look for answers in the community and in scholarly papers.
I started on thyroid hormone at the end of April after my thyroid stopped working. However, I still feel pretty awful. The hypersomnia is a lot better, anxiety and migraines too. But I've had swelling in my arms and hands since January (I think that's when the thyroid finally stopped working) and it's still the same. Pain has been coming and going.. Sometimes it's quite bad 7-8 of 10). I can live with that, and even the laundry list of systems across the spectrum, but I am a little concerned about some of the more recent symptoms that developed over the last 4 years.
I have problems with my muscles. they fatigue pretty readily (and then are pretty useless). And one muscle (in my thigh) sometimes stops working entirely and then works very slowly with periods of rest. If I push too hard, sometimes I get suddenly hot and have trouble breathing. A full stop and about 10 minutes of rest and I feel a lot better, but it causes persistent fatigue for a couple of days.
Sometimes I just have acute all over fatigue and at rest my muscles lose all tone. I end up just propping my legs and arms in place. And I've developed diplopia (double vision) that gets worse the more I use my eyes.
Reading about hashimotos I can see that all of this can be traced to hashimotos. But it sounds like a somewhat severe manifestation. Is it? Do you suppose eventually the thyroxine will help... But maybe it will take a few years?
Any thoughts on this are very welcome. I appreciate in advance your perspectives.