I have been on T3 only for around 2 years and am worried about how to check if all is OK since the NHS locally do not do FT3 checks seemingly even if you are on T3 only, and my GP doesn't have a clue on how to understand the blood tests, though I have told her that if I am T3 only then my TSH will show suppressed which it does.
If I pay out Blue Horizon to do a private check what should I do or be looking for? Should I do it first thing in the morning before I take my T3, and then it would be an accurate reading of my FT3? If it is then over range this would be a bad thing?
I understand that it is not good to have an FT3 which is above the range - and could lead to bone loss and/or atrial fibrillation? Given my age (62) I am nervous of this now.
I ended up on T3 only having been on T4 only for 17 years, but was not well, was overweight, and diagnosed with ME/CFS. My GP agreed to send me to an endo of my choice as my FT3 reading (done privately) was below range.
The endo let me try T4 plus some T3 but I felt worse on this and gave up after 6 weeks which in retrospect was not long enough, and probably 20 mcg T3 was maybe not enough either.
I then asked if I could try T3 only instead and to my surprise he allowed this providing my GP agreed which she did. Since then I have lost weight, but this has stabilised for around 6 mths now and reduced my dose slightly to 50 mcg which I take in 3 doses. My BP and pulse are usually fine ie lowish/normal BP, and pulse usually in the 70s.
Last year I did try to reintroduce T4 a couple of times, but didn't feel very well on it. I did manage to reduce the T3 and managed to take 25 mcg T4, but then realised that my hair was dropping out badly and hair on my legs stopped growing entirely which concerned me. I don't really understand the connection there, but it happened each time I tried the T4.
That said, I cannot say T3 only has solved all my problems as I still have stamina issues that I know are connected with the ME/CFS and have had a mitochondrial function test done a couple of times that confirm those connections. I would be willing though to try some NDT to mix with the T3 which would reduce my intake of T3 and maybe I could tolerate the NDT better.