Hello, I am new to this forum and would be truly grateful for any info or adivice anyone can offer. Sorry it is a long post!!
I have been diagnosed hypothyroid for 20 years and treated with Levothyroxine only, during that time my TSH was always kept at the higher end of the range (4.5 - 5) any attempt to have increased T4 to get TSH to mid or low range was dismissed by my GP and I was never given any other information about other tests for thyroid function. During the those years I have had a number of health challenges, which in hindsight are most probably related to being hypothyroid.
Over the past few years and with the availability of info online I lost all confidence and belief that I was getting good treatment. I decided to advocate for myself, I have recently changed GP practice so i ordered a copy of all previous thryroid tests and took that along to my new Doctor., he actually said he felt very sad and apologised for my having been 'undermedicated for decades' , he said 'your whole body, every cell will have been starving for thyroid hormone'. This was an unexpected response as I was ready to be fobbed off ...again. However he still wants to treat with T4 only ( I mentioned wanting to try T3 or NDH) and increased the dose to 125 and 150 on alternate days. My tests (after 8 weeks) have now come back as TSH 0.13 and FT4 20 (increased from 4.5) I dont have the actual print out yet to give reference ranges. The reason I want to try T3 is I have fibromyalgia type symtoms and dreadful headaches and these have worsened on the higher T4 dose although my energy has improved slightly. I have read that these symptoms can be alleviated with T3 or NDH
Can anyone tell me what my rights are as to being precribed T3 on the NHS in the UK? , my doctor was hesitant when I asked about wether he was able to prescribe it and I got the impression he would be questioned by his colleagues and the practice managers if he wanted to prescribe or even spend money on the FT3 test ie it's all down to the financial implications. I am seeing him again tomorrow.
I also have a consultation booked with Dr Peatfield at the end of the month but I undertand that he cannot prescribe but uses supplement alternatives, has anyone been treated by Dr Peatfield?
Thank you in advance for any info and for all the posts here that provide such a wealth of knowledge and experience of thyroid related issues. S