Was on 75mcg Synthroid + 20mcg Cytomel, but then due to hyper symptoms (multiple BMs, fast pulse, bad fatigue) and blood showing hyper my endo started cut back on meds. We slowly continued to cut back and the last step-down was from 50mg Synthroid to zero on Jan 1. I feel horrible now but endo says my thyroid is "working" so he will not prescribe meds. My nutrients are all very good. I think I need a little T3 maybe?? Recent bloods showing TSH has come down but T4 and T3 not budging. I went from hyper to what I now think is hypo (exhaustion, head pressure, major hair loss, twitching, achy). Seems like my T3 should come up at least a little? Any suggestions from you helpful folks?
JAN 1, 2019
TSH: 4.83 (.4 - 4.5)
Free T4: 1.09 (.82 - 1.77)
Free T3: 2.9 (2.0 - 4.4)
FEB 8, 2019
TSH: 4.32 (.4 - 4.5)
Free T4: 1.26 (.82 - 1.77)
Free T3: 2.9 (2.0 - 4.4)
MAR 16, 2019
TSH only: 4.08 (.4 - 4.5)
APR 13, 2019
TSH: 3.02 (.4 - 4.5)
Free T4: 1.13 (.82 - 1.77)
Free T3: 2.9 (2.0 - 4.4)
Thanks for any ideas. Maybe need T3? Body has been through so much w all the med changes this last year and I just want to feel normal again !!
With a TSH of 3.02 how can the Endocrinologists say your thyroid gland is now 'working when you've already been diagnosed as hypo?? Once diagnosed we do not recover!
Most probably because he believes that your TSH is now 'within range' he wants it to reach 10 again before being prescribed. The fact that your FT3 is at the bottom of the range you need an increase in dose.
Shaws YES the doc says now that I am under 10 my thyroid is working again. WHAT!? It doesn't feel like it at all! I am miserable! I have another doc who I think will work w me on trying some T3.
I did go gluten free and that did help w lowering antibodies and improved TSH but then eventually hyper symptoms startes. But I think we went overboard on reducing med to 0!!
Your GP is an ignorant jerk. He’s going to keep you ill. I’d run (in a slow hypo way) to the hills if he was my doctor. Is there anyone else you can see? Can you ask for a second opinion? 🤸🏿♀️🥛
MissGrace thank you for taking time to reply. I am no expert but that is what I thought -- that the doctor is way off target!! I do have another doctor I can see who I know will work with T3 if warranted and am hoping to get an appt the next couple weeks because I feel so dreadful. It is beyond helpful to hear the opinion of some of the folks on this forum who understand the thyroid so well. Thank you.
How right you are! How can we depend on doctors who only take account of the TSH whilst ignoring all clinical symptoms - of course they know none at all.
Slow dragon yes twice this last 6 months antibodies showed in range (below 25ish??).
I did go gluten free and that did help w lowering antibodies and improved TSH but then eventually hyper symptoms started. But I think we went overboard on reducing med to 0!! I feel like I need some me T3!! Feeling awful.
Yes just had D B12 folate Ferritin etc retested last month.
Just present the following and say 'Doctor because I've already been diagnosed I cannot suddenly recover, therefore I am entitled to proper dose of thyroid hormones. Give him a copy of the following.
We cannot recover from hypothyroidism unless a miracle has occureed or diagnosis was wrong. Although the majority on this forum would love to, so it is a lifetime of thyroid hormone replacements.
Shaws I have tears in my eyes as I say thank you for your guidance and helping me be more assertive. I will print and get into my doc next week. If he won't agree I have a backup doctor here in the US who also works with T3 one way or another I have to have more medicine thank you for confirming that for me!
I'm pleased to see that you have had vits etc retreated but are they optimal? Often we are told they are 'fine' but for many that often means that they are in range.
Silverfox7 yes high end on all vits so in good shape there thank you!
Dressagelovr - very slowly I am progressing. My numbers are staying in range albeit my tsh is high normal andc
t4 ccould be higher but it is in range. My specialist doctor said it is 6 to 12 months of symptoms once you are extremely over-medicated. And as you know Dr Brams says patient suffer "many" months. It's interesting now I will have a few days where I feel hyper with Hyper symptoms with loose stools weird head pressure and more rapid pulse and wired but tired, then I'll have a few days where I feel hypo very sluggish with muscle aches and pains. And now I'm having stretches of 5 to 10 days where I actually feel pretty normal. It's really odd it seems like a cycle of symptoms going through but month by month I seem to feel better and be able to do more. It has been an unbelievable struggle. My biggest problem was for many months I was taking medicine I didn't need and my blood tests continue to show normal until it was too late so to speak. I think there are so many people suffering because they are simply not getting the right amount of medicine or too much medicine.
Six to twelve months...yikes. My endo has changed my dose from 50 mcg levo plus 2.5 mcg liothyronine to 57 mcg synthroid at my request since the t3 dose, although small, didn't seem to agree with me. It seems my body is over-reacting to the change (lightheaded, tingling in arms and legs. and anxiety.) It's been 4 weeks but I must also add that I have not been my usually active self during this time since I've been sick with a bad sinus infection. I've had these symptoms before which I think is related to the med, and find it very unsettling.
Dressagelover... I absolutely think the tingling is from the reduction. Over the course of 4 months I went from 75 mcg of Synthroid + 20 mcg of T3 to zero medicine. So as of January one this year I have had no thyroid medicine and my numbers are staying in range so far. I absolutely have tingling in my lower legs and feet it's not as bad as it used to be but it started about 3 months after the reduction and I absolutely believe it's my body trying to adjust. I've also had a lot of days where I feel the lightheadedness. I am absolutely appalled by the lack of knowledge doctors and Specialists have regarding these thyroid issues especially when over medication is involved. Did you see in my earlier post the formula using your blood pressure and pulse rate that helps determine if you're overmedicated? I had a very old internist tell me that trick and it has proven true for me. Listen to your body that I paid better attention a year-and-a-half ago when my heart was beating too fast I was sweating too much and I was having too much weird head pressure even though my blood tests were in range my body was still over-medicated. Has been such a struggle! But I and making progress in each month now seems to be a little better than the month before even though I have lingering symptoms I can get through most days without too much trouble. Good luck to you!
Thanks for your encouraging note. I find these symptoms distressing, especially when a doctor does not offer validation. And so I take solace from one who's been there, such as your self. Sounds like you are fortunate and will not have to rely on meds. I am fairly certain I've been overmedicated and am taking Dr Baum's words of wisdom re.: withdrawal to heart. I think nany practitioners forget that a large determinant of dose is based on residual thyroid function as well as weight.
Thank you for your informative and insightful posts.
I agree with you about people getting too much medicine. I think I might be one of them. I've also experienced a strange head pressure during this ordeal.
Yes the head pressure when I was still taking medicine was extreme. Now I will go for a few weeks with no pressure and then I'll have a few days where I feel it again it's not a headache it's just a weird pressure that makes it hard for me to focus
Hello again: Has your specialist confirmed your withdrawal symptoms?
Hello again! Sort of... I explained in detail my symptoms and he just said I'm looking at 6 to 12 months. I have read a lot about people who have been over medicated and I think we all have an extreme variety of symptoms! My symptoms have been the same this past year but at times worse than others and sort of cyclical. I also meant to say earlier I very much think that how long it takes to come through this depends on how much and how long you've been overmedicated. I was taking too much medicine for a couple years and I think that is part of the reason it's taking such a long time to work its way through. When I was over-medicated severely I felt almost fluish it was an exhausting I can't describe. Some days I literally could hardly walk across the parking lot. I've also had unusual acne on the back of my head as well as unusual dry mouth. And just a really weird head pressure that was hard to describe very uncomfortable and made it hard to focus. My symptoms have now switched over to more of a hypo feeling where I'm just a little fatigued and have some muscle aches and pains which I can very easily live with! I think that's how it goes as your body is trying to adjust
... and remember I have completely stop medication and I may very well still need a low-dose but I am not willing to take any as long as my blood is staying in range. I can deal with hypo symptoms for now I'm going to give this a full year!
Yes I have had a wide variety of symptoms on and off some hyper some hypo and labs are (barely) in range. The hyper symptoms have mostly now been replaced w hypo symptoms. Doc said it can take 6 to 12 months to work out I am in month 8. I can tell my body has changed and the horrible feeling of over medication where I literally could barely get through the day is gone so for me labs are in range and symptoms exist but do continue to change.
Yes I have had a wide variety of symptoms on and off some hyper some hypo and labs are (barely) in range. The hyper symptoms have mostly now been replaced w hypo symptoms.
Thanks so much. My recent labs were in range during my recent change and my PCP told me "it's not your thyroid". Am in week seven and weary of feeling assaulted by what seems to be thyroid related symptoms.
Long story short... almost 2 years when I went gluten-free and that is when it all started -- my gut healed and more of my Synthroid was being absorbed and I was slowly getting hyper symptoms but my numbers were in range for many months. I had 2 top endocrinologist in my area tell me "it's not your thyroid" so as I was feeling sicker and sicker I ended up going to a functional Doctor who in an effort to try to help me actually added T3 to my Synthroid and within three months my blood finally showed extreme over medication and I felt so sick I could barely stand and talk at the same time -- exhaustion I can't explain! Along with a variety of other weird symptoms. It is infuriating that some of these endocrinologist look you straight in the face and say it's not your thyroid when we are in range but maybe not an optimal range for our bodies. I have lost so much faith in doctors over all this! I've read a million forums and there's very little out there about people who have been extremely overmedicated. I would say just really watch your pulse pressure because that is what tells if you are hyper or hypo if your labs are in range this is helpful. It is such a struggle!
My situation is somewhat similar in that a functional medicine doctor put me on T3 due to "suboptimal thyroid" five years ago. My labs were normal, although low end at the time. After d/c all meds at one point, my TSH was 6.6 After six weeks. A conventional endo start me on synthroid, and the rest has been a rollercoaster. Sometimes I wonder if I need it at all or I'm just overmedicated and haven't found my dose. Like you, T3 really puts me into outer space.
Glad you shared with me I was curious about your situation. That's a good question whether you need the medicine at all. I bit the bullet in step down all the way to zero but now with his hypo as I feel on many days I wish I would have stopped at about 25 or 50. Now I am determined to Ride This out at least 12 months to see is it improves on its own. I think there are many people like us who have been over medicated a little bit or a lot like me and although Labs show in range are anything but okay. I can't remember if you saw my post about dr. Bram's and His Four case studies on iatrogenic hyperthyroidism if not I will send you the link very interesting brief studies on people who were over-medicated. What are your symptoms?
Also want to share with you that I have kept a close eye on my temperature as well as pulse pressure. When I was extremely overmedicated and even for many months after my temperature was extremely low somewhere around 96.0 to 96.7. Now that I feel I've worked my way through the worst my temperature is very close to normal usually around 98.2 or 98.4. So that's another thing you can watch.
I do believe there are many of us overmedicated and it just doesn't show in our labs. I think it's part of the reason why so many people feel bad even though their labs are okay.
You are so right about the labs since they do not reflect what's happening inside the cell. Yes because of your post, I ordered Brams book and read the iatrogenic chapter. My symptoms during the step down these days are upper and lower extremity tingling, ligheadedness, odd aches and pains, and anxiety. I also notice my blood pressure is much lower than usual.
Kudos to you for sticking this out. Don"t know if I can since I'm not 100 per cent sure of the cause of my woes.
Also wanted to add I get the head pressure sensation and brain fog.
About 2 months after I made my final step down to 0 meds my lower legs started tingling and, 6 months later they still tingle most of the time. I have random twitching as well - Head pressure is MUCH better - I will go 3 weeks or more now without feeling it. Brain fog has gotten better too. Last year I had substantial testing - bloods, scans, neuro testing etc. and nothing (which I am very, very grateful for). So we just have to wait it out and be patient as possible. Let's keep in touch!
How are you faring with the transition? It"s been 11 weeks for me now and the tingling has gotten worse in terms of all-over tingling rather than just arms and legs! Labs are pending. Don't know how you can take riding it out for so long!
Hello good to hear from you! Well I don't know how I've done it either I really don't. I am on month number 9 with no medicine at all. My numbers are holding in range but not optimal. I will say that after about month number 7 I had a stretch of about a week where I felt almost normal then a flare up for a week or two then I had a good stretch for a couple weeks before another bad couple weeks. Most recently I had almost 4 weeks in a row where I felt pretty good but unfortunately last week I went downhill again. I have had tingling on and off in my lower legs and feet literally since February. Bad days consist of fatigue Iggy out of it and a weird head sensation. I've actually had good days where I could work around the house pretty hard all day. So it is a mix but it does seem like the stretch of good days continue to get longer! I made an appointment with a research thyroid specialist in my area and I finally get in to see her next month can't wait to see what she says. I will keep you posted! How are you getting along otherwise? Have you it's an eye on your temperature and pulse pressure? What I find amazing is how many things in my body have improved including cholesterol, glucose, blood pressure, temperature everything is in range and better than it's been in many years. Now if I can just quit feeling so hypo!
Is this research person you're scheduled to see here in the states? I'm eager to find out what she says. Best regards
Yes she is Dr McGill research endocrinologist at Barnes Jewish in st louis. My other doc is at Barnes and he has been very helpful but I'm curious to see what a research Doctor will say. I will keep you posted! It has been brutal and it's amazing to me how I can feel so bad one day and so much better than next as things level out!
How are you faring with the new endo and tirosint? All of my upward adjustments, 75 mcg synthroid, then 64.5 mcg synthroid have resulted in being too much. Now I am back to 50 mcg waiting to see what the Dr. directs me to to next. This all makes me think my thyroid is randomly contributing to the whole mess. Have appt with a thyroid specialist in Charleston, but not til the end of June.
It has been a tremendous struggle I cannot believe what I've been through the last two years. Remember I was severely severely overmedicated through most of 2018 and by early 2019 had come off all thyroid medicine. Going gluten-free had evidently put my Hashimoto's in remission. I can't describe how miserable most of my days have been I have managed to work but barely get through most days. In January 2020 under the care of a new very good doctor I tried a very low dose of tirosint but within a month hyper symptoms came back fiercely. That tells us my body simply cannot handle and does not need the medicine. So I continue to struggle feeling extremely hypo most days now. A different specialist at Barnes-Jewish in St Louis who has helped treat me told me early last year this is what I would have to go through that it would literally be 12 to 18 months or even longer for my body to readjust to being overmedicated in 2018. And as long as my labs are staying within range I simply could not take medicine it would just delay my healing. So I wait. My labs are not optimal but they have been in range for over a year now and my antibodies are normal. I will say in the last month I feel as if I have improved a tiny bit. Simpsons truly have switched from horrible hyper symptoms now to just standard hypo symptoms. Not sure if I mentioned to you that Dr Emmanuel Brams wrote a book and included a chapter on iatrogenic hyperthyroidism about folks who had been taking too much medicine and was trying to adjust their body to taking less medicine. You can google and find those case studies and that is exactly what I seem to be going through. The good news is After this last horrible Year my blood pressure has finally returned to normal (or a little on the low sidel my temperature has finally returned to normal and my heart rate is back where it should be in the low 60s. So my body is slowly getting back to normal. Didn't mean to be so long-winded it's just not an easy thing to explain! So I am hanging in there and appreciating some days this last few weeks that have seemed better. Keep me posted on your progress! It sounds like we might be in a similar boat!
Tsh has been 4.0 to 2.75 (range .5 to 4.5). It had been creeping down this last year but last test last week was 4.0. Yes this whole year I have had ongoing hypo symptoms some days really bad - aches, pains, head pressure, no focus, tingles in feet, low blood pressure. Feeling rotten. I agree w you the thyroid kicks in and contributes to the whole mess! Just recently I felt hyper symptoms and do think my thyroid is kicking in. But that is what we want. The Barnes doc explained it takes this long to reset the body after serious overmedication - how long it takes is based on how long and how severely the overmedication was. He did NOT condone me trying meds again and said it would only delay my healing which it did. But I tried anyway and as I said it only brought back the severe hyper symptom. I can tell you this - when I did start meds again that first week I felt 100% good and I was ecstatic to feel like that! But then after a few weeks it totally caused hyper symptoms again.
Boy this sounds so familiar every time I have a dose decrease. Also I get anxiety when too high or too low. And this time weakness. Any of that sound familiar?
Weakness - YES - UGH I hate it! Many of my symptoms are the same whether high or low but now I can tell the subtle differences. But yes weakness for me is way worse when hyper - a weakness I can't really explain a sickly breathless electrified kind of weakness that comes from the core vs. just regular weakness you get when hypo. I never really ever had much anxiety trouble. 7 years ago when I was diagnosed Hashimoto's my TSH was up to about 9 - never very high. Several docs have told me if I had known back then to go gluten free I probably would have never needed med. And yes the new/second opinion doc in Jan of this year who had me just try Tirosant absolutely said to stop it after the hyper symptoms rushed back (high pulse, higher blood pressure, weird head sensations, hot/cold on and off, breathless). After I stopped there was a week or two that was very bad as body adjusted to med being stopped and then returned to just normal bad if that makes sense. I have had 2 years of massive blood work, head MRI, chest scans, EMB, nerve conduction - all very gratefully - normal. I have dealt with the same hyper/hypo symptoms for 2 years as I went through over and now what feels under medication as my body tries to adjust. It has been 14 months now since my last dose of Synthroid (other than the Tirosint test in Jan which failed) and I have in the last few weeks started seeing a subtle change and days have been slightly better. So you're case sounds similar? Did you see my post about watching your pulse pressure - that has been very, very accurate for me knowing if my body is hyper. Pulse pressure is--- top blood pressure # minus bottom # x pulse rate. So let's say 140 / 85 (140 - 85 = 55) x 74 pulse rate = 4070. A very old internist said this is how they determined if a patient was overmedicated on thyroid meds prior to blood tests like during WWII (which in my case blood tests have been pretty useless - because it's what's in the cells not the veins) - anyway, if a patient's pulse pressure # was over 3200 that is how they knew to cut back on thyroid med. Well, when I first learned this just over a year ago - at which time I was very overmedicated - my pulse pressure was usually 4000 - 6000. Now, over a year later w no meds my pulse pressure is usually 1800 - 2800. So pulse, blood pressure, temperature - have been very helpful to me as a keep an eye on everything! Do you watch your pulse?
No I haven't since I have hypertension which is just fairly controlled
On diagnosis my TSH was 6.6 with normal antibodies but lotsa tingling, lightheadedness, and foretfulness. Thyroid ultrasound showed atrophy which endo said was consistent with Hashimotos at some point.
This e ndo I am to see in June just wrote a book and mentions how the thyroid can sputter and some patients, after no success with stability on meds, etc. may want to consider ablation or thyroidectomy. She specializes in thyroid only.
Did the specialist you see specialize in thyroid?
Yes over the last 2 year I have seen several endos not impressed with ANY of them they see normal blood and scans and dismiss the symptoms - the two docs I see now are both very good internists who have seen a lot of cases. But I have not seen a doc who specializes in thyroid so to speak. Your doc sounds very interesting can you share the book name w me? And would love to follow back with you and see how your June appt goes.
Didn't realize cold sensations were a symptom of hyper. I can set my watch getting too cold around noon and then 8 pm. And I live in Florida! Yes, our cases do sound similar.
Right now I'm on day 10 of reducing from 64 to 50 and really feel it. Tried to get some exercise and it just wasted me.
Book is named Everything You Must Know about Hashimotos Disease by Dr Brittany Henderson.
When I have reduced meds I am really bad for about 2 weeks or so - miserable - no working out at all in fact out of the last year I've only started very easy workouts this last month. This is such a challenge! It is very encouraging my thyroid labs are all in range for over a year now including antibodies. But it has been a rough year as body adjusts and I totally agree w you - my thyroid sputters and is learning to work again and boy I feel the crummy affects of the changes! Dr. Henderson seems to be incredibly good! So happy you get to see her - I would like to follow back and see how she does for you w your June appt. How many months ahead did she book? - I am in St. Louis, MO but not opposed to trying someone like this. Although for me I think it is a waiting game right now as I have started to feel a little better this last month finally! - waiting to see if my thyroid will do the trick on it's own .
I had to book 3 months ahead. I will keep you posted
Great thanks. And can I ask - as I compare our issues - when you tried upping your dose how long before the hyper symptoms started again? I was able to take the med maybe 3 - 4 weeks before I had to back off due to hyper symptoms returning. Just curious about that.
On day 14 of reduction from 64 to 50 of levo and feel sick....weak, tired, achy, cold intolerant with a dull headache and tngling. Returned to bed twice today. Blood pressure and anxiety much improved. But I need to function and move my horse so will probably take a smidge of T3 to
get thru it. I am fairly certain that I need a certain dose of levo as my ultrasound shows--according to my endo--that 40% of thyroid is atrophied. I"ve been going through this vicious. Cycle for 5 years and am at wit's end. Was through a major upheaval like this 4 years ago and I spent a month housebound and in bed.
Oh you poor thing my heart so goes out to you I literally know exactly how you feel! You are at the worst of it right now probably hopefully the next week you'll get a break. Hang in there! I tried to take medicine once in December and then again tried in February and both times it was horrible. I have fought this 2 years trying to adjust to no medicine most of my days now are fairly bearable. It's maddening when you can't do the simple things you need to do! The new Doc is right around the corner for you!
And very good news your blood pressure is better that is the number one sign for me if my blood pressure pops up I know it's too much medicine and that is good your is back in check! You know something is working better!
The only words of wisdom I have is somehow don't let yourself get down I just don't let myself think about the wasted days and in my case hoping my body resets as the Barnes doctor says it just takes a long time. I can't remember are you positive for antibodies? Are you gluten free? Just wondering if you're like me and maybe you don't even need the 50 that is a very small dose maybe it's enough to keep your thyroid from working but not enough to make you feel good,
And your body, like mine, absolutely will not tolerate any more medicine.
Thanks so much for your kind words. My antibodies are and always have been within range. I'm not gluten free as I have had negative intestinal biopsy. I also am a Dietitian and the literature indicates that only works for thyroid problems if you had a gluten problem to begin with. And Dr. Henderson confirms this in her book. I don't think that, like yourself, I can get off meds completely based on my ultrasound. I think my gland is sputtering like an aging ovary and the problem is compounded by incorrect thyroid dosing. I am just astounded at how sick the whole thing can make one feel. Thanks again for your support.
Need to add that I had labs taken after 11 days of dose reduction and TSH went from 0.8 to 2.8 and the serum free t3 and t4 were good. But I think the problem now lies with what is going on within the cell as the deiodinase enzymes adjust to yet another change.
Have another question for you: woke up with hyper symptoms on Day 15(anxious, hyper, heart rate up) after two days of no energy. Is this all part of the adjustment process of dosr reduction?
I absolutely think so - when I was coming down off trying meds (twice - once Dec and once Feb) the few weeks following were a horrible mix of hyper and hypo symptoms but yes my heart rate and BP would spike, terrible fatigue - and one of my worst symptoms is head pressure and tightness in my upper shoulders neck - like flu feeling. So yes I think you are adjusting.
A stool test back in late 2017 indicated I was severely Non Celiac Gluten Sensitive (NCGS). I had two high level specialists review the results and agreed I am severe NCGS - the gluten markers were off the chart. I have tested negative for Celiac though. So going gluten free is what improved thyroid function ... but not realizing after going gluten free I needed LESS medicine and I was feeling worse and worse - a negligent doc add a massive dose of T3 thinking that would help and THAT is what caused the "thyrotoxicity" I am still trying to overcome. Body was poisoned. Anyway, I have several medical reports that show people on thyroid meds generally need to cut them in half IF they are Celiac or NCGS and go gluten free. Well, in my case since my TSH was staying in range I kept reducing meds down (staying gluten free) to 0 under doc care. I think there are many of us whose #s are in range but we are suffering due to the sputtering you mention and the fact that our cells are not happy.
It truly is unbelievable how bad this can make you feel for so long!
I've read medical reports that indicate when you change diet like I did it doesn't necessarily show in your labs but your body adjusts and symptoms start. Once I went gluten free the hyper symptoms started about 3 months later and got worse and worse until I got of all meds. Eventually the severe hyper symptoms stopped (took about 8 months) and since then the ONLY time they have returned is when I tried to take meds.
Perhaps you do need that small dose to keep your levels right for you.
You being a dietician you know a lot about diet/health - but have you thought about checking for NCSG?
I have asked several top docs is there any way to test receptors/transmitters/cell function but I hear "no" - and that is what we need to know!
My experience is GPs don't do stool testing for this. The reason I had it done back in 2017 is I was so dang constipated all the time and went to a "functional" naturopath doctor who recommended the stool test. Came back off the charts Gluten Sensitive and that launched me into where I am now. I actually want to have it done again to make sure the numbers are where they should be I've asked a couple doctors and they don't really do stool tests like this. I have recently read there are some pretty good tests you can order yourself but haven't found one that tests the several things I want to look at. By the way the stool markers that showed Gluten Sensitive are.. Secretory IgA, Anti-gliadin IgA (Immune Response category) Elastase-1 (Digestion category) and Calprotecin (Inflammation category). A week or so ago I started looking for a stool test I could buy that tests for those 4 things but haven't found one yet. To pay for it yourself is probably going to be around 500 and the functional dr I believe charged me 800. You really should think about testing for it that could be a missing puzzle piece for you! A couple doctors have told me if I had gone gluten free back when my range first went out seven years ago I probably would have never needed the medicine at all. And like you I was always on a very low dose like 50.
My experience is GPs don't do stool testing for this. The reason I had it done back in 2017 is I was so dang constipated all the time and went to a "functional" naturopath doctor who recommended the stool test. Came back off the charts Gluten Sensitive and that launched me into where I am now. I actually want to have it done again to make sure the numbers are where they should be I've asked a couple doctors and they don't really do stool tests like this. I have recently read there are some pretty good tests you can order yourself but haven't found one that tests the several things I want to look at. By the way the stool markers that showed Gluten Sensitive are.. Secretory IgA, Anti-gliadin IgA (Immune Response category) Elastase-1 (Digestion category) and Calprotecin (Inflammation category). A week or so ago I started looking for a stool test I could buy that tests for those 4 things but haven't found one yet. To pay for it yourself is probably going to be around 500 and the functional dr I believe charged me 800. You really should think about testing for it that could be a missing puzzle piece for you! A couple doctors have told me if I had gone gluten free back when my range first went out seven years ago I probably would have never needed the medicine at all. And like you I was always on a very low dose like 50.
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normal TSH and T3 but Low T4
Low TSH with normal T4 and T3
Low TSH, normal T4 and T3
Low TSH with normal T3, T4. 
TSH increasing but T4 & T3 improving as well?
