Along with being hypo, vitamin D deficient and having Hughes Syndrome it now looks like I've got another 'thing', just got a PTH result back;
Serum parathyroid hormone 10.4 pmol/L (1.6 - 7.5 pmol/L)
Corrected serum calcium 2.36 mmol/L (2.2 - 2.6 mmol/L)
Total Vitamin D 144.2 nmol/L adequate (taking 9000 IU daily under guidance of endo)
25-hydroxyvitamin D3 129.2 nmol/L
25-hydroxyitamin D2 15.0 nmol/L
I'm still having huge issues with joint and muscle pain, lethargy and swelling, all of which temporarily vanished when I was recently on holiday in Australia but is now back with a vengeance!
My GP wants to speak to me and I have a phone consult with my metabolic bone disease specialist soon but if anyone has any thoughts or experiences of all this parathyroid stuff in the meantime I'd be most interested