Well I have finally read all my medical records and, apart from the one already told to you, re having thyroid disease from a baby, there are no other great shocks. Well, apart from my blood results!
I have some results going back to 1999 and a comment on another page from 1997 which I hope someone can explain:
DUNDEE RISK: Rank = 76 Score = 3.8
Still I have discovered I was put on 50mcg levo on diagnosis of Myxoedema which was raised to 100mcg 6 wks later and 125mcg 5 wks after that. At 6 months I was taking 150mcg. There are no blood results available in my records until 1999, some 8 years later. I think I must have been somewhat stable as my dose was not altered in all this time.
15/6/99 TSH 0.08 - levo cut from 150 to 50 mcg!!
1/10/99 TSH 17.86 - raised to 100 mcg , surpise!!!!
23/6/03 TSH 1.4 (comment on report, TSH less than 0.1 normal for patients on thyroxine ) - first and only time I have seen this anywhere.......
1/8/03 TSH 1.4
9/12/04 TSH 0.09 Free T4 27.8
26/4/05 TSH 1.5
14/2/06 TSH 4.21
Jan/07 TSH 57.77 Free T4 9.9 (lab comment: Inadequately replaced) You don't say!!! Levo raised to 125mcg, then 150mcg, then 175mcg.
21/2/07 TSH 6.09 Free T4 17.1 Levo raised to200mcg
26/4/07 TSH 3.51
23/5/07 TSH 3.31
9/2/09 TSH 0.50
18/2/10 TSH 1.93
28/2/11 TSH 1.65
8/3/12 TSH 1.79
7/12/12 TSH 0.08 Free T4 19.9 Free T3 4.4
25/2/13 TSH 0.09 Free T4 19.8 Free T3 4.0
13/5/14 TSH 32.18 Free T4 13.1
3/11/14 TSH 0.03 Free T4 21.6 Free T3 4.2
Gp wanted me to cut levo to 175 mcg but I began to feel really unwell again so went back to 200 mcg. Gp was not impressed!
No idea what happened in May last year but gp had rung the lab and they said this was correct and not a typo. I suppose this does explain why I was falling asleep all the time, again. Cannot remember if brain fog was worse as my memory is s**t anyway.
I cannot find any results between 99 and 03 but I do know that my brain fog suddenly and inexplicably got very much worse in 2002, I do not know if this was due to my thyroid or the fact I had an extremely bad motor accident in which I banged my head hard and had (whatever it is called when you band your head - see brain fog strikes again). I also had flashbacks for nearly a year and needed therapy. I lost a promotion at work because of this.
This has been quite an interesting exercise. There are lots more blood results but I have just been concentrating on the thyroid ones for now. I am sure I will eventually get around to putting them all on spreadsheets where they will be much easier for me to compare.
I am seeing the endo next Thursday and hope he will be able to help me more than the gp.
ps My boyfriend told me tonight he is steaming angrily at the doctors who haven't sorted out my meds yet, especially the B12. He is quite sure I will get so much better and be the old me when this is done. So sweet, he never even knew the old me. How nice is that.