Hypothyroid, anyone with excessive sweating? - Thyroid UK

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Hypothyroid, anyone with excessive sweating?

June2210 profile image
34 Replies

Hi does anyone else experience excessive sweating, am on 50mcg levothyroxine and also have weight gain and tiredness. Thanks

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June2210 profile image
June2210
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34 Replies
puncturedbicycle profile image
puncturedbicycle

Those are fairly typical hypo symptoms. It sounds like you may need more medicine. 50mcg is quite a low dose.

Have you got a copy of your latest blood tests and ranges which you could post here? It would help give a better idea of what's going on. Has your gp tested vit d, b12, folate, ferritin and iron? Sex hormones? And are you taking your levo well away from food or anything but water? All these things can have an effect.

Newfiedoglover profile image
Newfiedoglover

I have excessive sweating no matter what dose of LevoT im on, & I've been hypo for over 20 years.....I also have a neurological disorder similar

To narcolepsy.....I think that's the cause of my sweating after researching it in depth xxx

Marylyn profile image
Marylyn in reply to Newfiedoglover

I have excessive sweating my thyroids tests have been fine.I have vitamin B 12 & VITAMIN d deficiency .sometimes it occurs when I am not doing anything strenuous.Sleep apnoea goes with B12 as does so many symptons.Google Sallys book Could it be B12 ? It was our lifesaver seeing our levels was ignored & thanks to delayed treatment we both have numb feet & hearing loss.

Mikiviki profile image
Mikiviki

I had excessive sweating on any dose until I changed my brand. From tablet form to liquid. This changed my whole life

in reply to Mikiviki

Hi Mikiviki, I'm very interested about the option of having a liquid instead if tablets. Did you ask, or did your doctor/Endo make the recommendation because of the sweating? thanks

Mikiviki profile image
Mikiviki in reply to

I found out about IBSA pharmaceuticals (maybe Swiss) from a retired endo and because they are available in Italy where I live I gave it a go. Life changing. I had tried everything and suffered 14 years of sweating away almost like hot flushes but different. In fact my doc thought it was just that I couldnt accept hot flushes . But we know better than the docs about how we feel . I was fine if I was lying still but as soon as I was moving ( walking, normal stuff) I was at risk of sweating

Which is almost ok in hot summer weather but in the freezing cold you can catch your death.. And it's so uncomfortable

I also tried moving the levothyroxine up and down but nothing worked until I found this product called Tirosint in monodose liquid sachets

Sarahmacspeaking profile image
Sarahmacspeaking in reply to Mikiviki

Hi I'd love to know about IBSA and what you take. I live in France and have to import Armour from Eng. Problem is it keeps getting seized etc by customs. Would love to find an alternative and Italy is just 1 hour away. Many Thanks

Mikiviki profile image
Mikiviki in reply to Sarahmacspeaking

As I said in my post I switched to TIROSINT in monodose sachets and never looked back. If you live 1 hour away all you have to do is find a chemist and ask for this medicine in the dose you need. It comes in 25/50/75/100 etc. it is also available in drops which are useful if you find you need a dose between the given doses e.g. 82. But generally one fits into the regular measure. IBSA just come out with a new form of levothyroxine in a small gel form. This is not yet available on the local N. H. System. This is called TICHE. However TIROSINT liquid in monodose is if you can get it prescribed. Farmacists in Italy generally don't mind giving medicine even without a prescription. All you need is to find a chemist that will give it to you keep the package for the next time to prove you are taking it. As a ps not all chemists keep it in stock but if you ask for it they generally get it from the central deposit within a couple of hours

Good luck

helvella profile image
helvellaAdministratorThyroid UK in reply to Mikiviki

Tirosint & Tiche

endocrine-abstracts.org/ea/...

Minigirl profile image
Minigirl in reply to Mikiviki

Hi Mikiviki, I too have hypothyroid with excessive sweating & joint pain & lots more. I`m in New Zealand & would love to try the liquid instead of tablets. Also can you tell us what else it helped with your thyroid condition, to give us some hope. Any information about treatment would be very welcome. Thanks.

in reply to Minigirl

Hi Minigirl, I'm also a kiwi and have massive heat intolerance and excessive sweating. But only at temps above 18 degrees Celsius. I'm absolutely fine in winter but the very day the thermometer goes up to 18 degrees I'm sweating heavily all over. Except for hands and armpits, strangely! Haven't found any Dr in nz that knows or cares about this issue. I'm losing hope.

I have excessive sweating too. The doctors put it down to my weight, but it can start without me even moving! I haven't hd mine checked since diagnosis (October 2013) even though I have ubsequently had a suspicious nodule and half my thyroid removed. I hope to see the Endo feb/mar time :)

jellynpain profile image
jellynpain

I suffer extreme sweating but chronically at night. I have half a thyroid & micro pituitary adenoma My Endo bloods were ok, apart from low Folate (been ignored). Top priority & vita D refused by lab!Endo & gp knows and ignored. Driving me crazy!

X

MariLiz profile image
MariLiz

This is really interesting for me, as I've been experiencing very localised sweating. It always occurs at night, and it's around my neck/throat area. As I have an under active thyroid and am on B12 injections I've been wondering about the cause? It doesn't happen every night, but often enough to worry me. MariLiz

June2210 profile image
June2210

My sweating, is usually during the day, the slightest effort and my face and chest are wet through, this started this year whilst we were on holiday in London, during the hot weather, but I seem to have facial sweating with the slightest heat. It's driving me mad, I look like I,Ve dipped my face in water.

JellyJac profile image
JellyJac

Me too, mine is just around my trunk and only at night... I presumed it was my memory foam topper..

joyce59 profile image
joyce59

hi june i too suffer from heavy sweating but have never been certain if it came from thyroid problems or the menophase. the gp did prescribe me a deodorant but i came out in a rash 1st time i used it.

joyce59 profile image
joyce59

quite some interesting posts here. when i questioned my last gp about the sweating she said this only happens with an overactive thyroid. however all the posts confirm what i already suspected. i have to replace clothing every few weeks due to the embarrassing stains and working as a nurse i am very self-conscious about my uniform and have to keep asking for new ones.

BeansMummy profile image
BeansMummy

I overheat dreadfully, it is as if I have a wonky thermostat. I can be outside in a vest top, with sweat dripping off my face, watching my breath freeze in Artic conditions. I know it's cold because I can feel it on my bare arms, but I still feel hot!

I had my levothyroxine increased fairly recently - I lost 2 dress sizes (18 to 14) with no change in diet or exercise (as if I could exercise!) in the space of 4 months, but the overheating seems to remain constant. I think it will have to be one of those symptoms I just have to learn to live with.

Ann365 profile image
Ann365 in reply to BeansMummy

Do your arms feel funny? It is like I have to cover them out of the air, when I am sweating.

BeansMummy profile image
BeansMummy in reply to Ann365

Gosh, this is an old post! No, my arms don't feel funny, just very hot!

Mikiviki profile image
Mikiviki in reply to Ann365

Yes

Polaris profile image
Polaris

I've been on 150 mcg Levothyroxine for a while now and have always been uncomfortable with sweating in hot weather and at night. I've found this and other symptoms have much improved since supplementing with B12 spray and high doses of vitamin D3 (I'd read that night sweats are a symptom of vitamin D deficiency). General mood and energy much better too.

johnnyxs profile image
johnnyxs

I have suffered ocassional random daytime profuse sweating to the back of my neck and the top of my head. It happens whilst sitting still or moving and generally lasts for anything from an hour to several hours . I am not sure what causes it though.

The only thing that seems in any way related is what appears to be possible hypoglycemia .I sometimes get the shakes and an anxiety at the same time and have to eat like crazy for 30 minutes before the symptoms ease

At night time I get extremely hot all over but particularly at the back of my head and neck so much so that I have to turn my pillow over every 5 minutes throughout the night and move around the mattress to a cooler spot when awake. I suspect this may be partially due to my eating my main meal at 7pm of an evening and then eating snacks until bedtime. Even during the winter I sleep with no cloathes and often no duvet cover either.

It never occurred to me that this could be related to my being Hypo.

It would be interesting if we constructed some polls to investigate common symptoms and complaints to see if we can draw any correlations

beimmunewise profile image
beimmunewise in reply to johnnyxs

Hello Johnnyxs,

I too have been diagnosed with hypothyroidism, but only recently have I been having these awful night sweats, that have now also turned into excessive sweating with only light physical exertion. The back of my head becomes soaking wet and water drips down from my head and behind my ears down my neck and sometimes a little down my back. The worst part is that although I feel "overheated" at the time, a half an hour later I am freezing from being really cold and get chills. I seem to be in a hot/cold cycle, and don't know how to stop it! My Doc decreased my Levo from 100 mcg to 88 mcg and I'll have a follow up blood test, but it's been 2 weeks since the decrease and my sweats are just as bad. I feel just awful. I am going to try some of the supplements suggested on this site and see if something helps. My Doc thinks its a virus, but a virus that lasts for more than a few months might not be a virus. I hope something has helped you!

Ann365 profile image
Ann365 in reply to beimmunewise

Does your urine smell like perspiration????? Mine does and They told me I was not getting enough water, but when meds were adjusted a little it stopped. I felt like was on fire.

Kelly_06 profile image
Kelly_06

I'm on the same medication, 100 mcg, and I sweat unbelievably. Just a walk to my corner store will cause me to sweat, mostly my head, that when I get home, I have to take off all my clothes to cool down, wrap a towel around my head, to keep the sweat from pouring down into my eyes, and keep it from dripping off my short haircut, and running down my neck and back. I also have RA, so I need to walk and exercise, but the profuse sweating is horrible.

Today was the first time that I read, online, that it could be caused by Levothyroxine. I really, really need to tell my Dr. about this, and see if she can help me. I SO hope I finally found the cause. And, the weight gain, I'm on Prednisone, and have been for several years, and didn't know if that was the primary cause or not. I wonder how long it take for Levothyroxine to get out of your system completely, so that I can make if through the summer, without hiding inside with my a/c one!!!

I've had excessive sweating for years, I'm on a hormone patch but it does nothing for the sweating. I also take levothyroxine for Hashimo s disease. For about 10 yrs my levels fluctuated a lot but for the last few yrs it's more stable. Have you gotten any relief? My doctors don't seem to take this issue seriously. I DO!

Tiredmum75 profile image
Tiredmum75

Yes but I live in Australia so it might be the climate to

Minigirl profile image
Minigirl

Re Sweating with Hashimotos: Hashimotos causes inflammation in the body, like a form of Toxemia. To cure this, Take 5 Colonics 10 days apart - Then 10 Colonics 14 days apart.

Most important for a cure that the Colonic Machine is an OPEN MACHINE i.e. meaning it can take Solutions. Ring first & ask if they will let you put solutions thru their machine,

The Solutions to take with you to ask to put thru the machine while you are having the Colonics are: Thymol Glycerin Compound at least One tablespoon (put one tablespoon in each of 4 small bottles to take with you. Tell the colonic operator to put a tablespoon to one & half to 2 gallons of colonic water. And in the last or rinse water add 2 tablespoons of Agar powder tell her to put a little water with the powder in a small dish & stir well before adding to the colonic. Buy the Thymol Glycerin from a chemist or Antidote Chemist in N.Z. buy the Agar online from Cruelty Free shop (the cheapest).

For a cure Diet is most important for it to work. No butter, no grease, no pork, no bacon, no fried food, no meat. Breakfast: Oranges or Grapefruit one or the other not together, or juice of tomatoes. Gluten free Dry toast no butter. Soft boiled egg yolk only no white, spread on toast to eat. Hot drink what ever you like. Healtheries Blackcurrant & apple tea bags are nice with teasp honey.

Lunch: Using a Juicer: Juice lettuce, celery carrot in one glass, Juice a large glass plain carrot juice, Juice baby beetroot in another glass drink , Then have a small vegetarian salad no cheese in it, just salad dressing & salt. Plenty fruit oranges, all stone fruit, pears, bananas in small quantities, no apples.

Main Meal: Veg soup, fish, grilled chicken, cooked veg those grown above ground, peas, lentils, beans, butterbeans. not too much spinach, or sliverbeet.i

Tillypooh profile image
Tillypooh

I have been on thyroxine for 14 years.In the past couple of years I have had excess sweating and since Jan have been putting on weight and having several headaches.I have a go appt next week but I don't hold out much hope for an answer.

spacestar profile image
spacestar

Hashi sufferer here too and I have also had this weird symptom. For years I've tried to work out what the reason is. I asked Dr google no answer I tried asking my Endo, yes you got there before me, still no answer! but its really debilitating as after it I feel exhausted.

It comes on from nowhere and my face and neck are covered in sweat, not very nice!

I take NDT but I still get it,used to get it on Levo and on T3 when I took that, I'm through the meno and my flushes were different from this so it's not that. I have noticed when I am over medicated which sometimes happens in the summer it it worse, and I also get it when I am under too so its finding the balance which as we all know is not easy. It often wakes me up as I seem to get it about an hour before I take my morning dose so I wonder if its linked to being low in thyroxine during the night, It's horrible and annoying if anyone can shed light on this it would be great.

I do and J have no idea what to do about it.

LER555 profile image
LER555

I know this is a very old thread but am curious what solutions all of you have found, if any. I have hashimoto's and am on 100 mcg Levoxyl but have excessive sweating on my head an neck. Now menopause is added to that but the hot flashes are different.

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