it's been a very long time since I've posted. ... - Thyroid UK

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it's been a very long time since I've posted. Need some advice please.

merissa profile image
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For those of you who.are familiar with my name, I joined tuk 2007'and fantastic feed back.and help, as a result gave me knowledge.

IT has been four years, with ups and down and a tsh to match, a long side other health complaints.

Not medicated, partly diagnosed and left to battle and work myself through the storm.

I've had blood test, seen private and followed protocols, hence took vitamins as suggested.

I eventually was referred to my nhs endo as my symptoms were so frightening , after a long battle with the gp, thinking I had anxiety.

To cut a long story short, I missed my appointment back in March and decided to sling the towel in as I couldn't bear negative feed back from.the endo.

The last six months have been ironic, I've lost my pubic hair, periods stopped, chronic bone pain, stiff , clicking, everywhere. I can not stand heat and the slightest task , I'm sweating so much, also developed sleep panes.

I have back flow of mucus, which at times feel I'm going to choke, my muscles hurt with nerve pain.

Heart beat skips, and so forth.

I've just had two accident, broken bones , slightest fall, although had a dexta scan a year ago. I noticed in hosp my liver was high, blood pressure low and I think crp was high.

The question is do I have hyperthyroism or hypo or something in the mix?

Should I write the endo a letter, bear in mind gp suggests if the endo feels there is no hypothyroidism , then end off, I could take the risk in seeing him.

My Lyon nodes under ear swell up and down constantly and I feel I feel Ill.

I'm not sure if my vitamin minerals are up to the levels they should be. I had low vitamin d , b12, folate, iron, Ferratin, kidney failure.

I feel I'm starting the battle again, I do push through my symptons, but suffer if I've over done it. I took up excessive however the pain the day after was to much.

I've cut out dairy and reduced my smoking intake and drink lots of water. I've had lots of test and scans in the past and vague issues was detected. What wasn't noticed was fluctuations in my tsh and antibodies ( TG).

I don't feel any better and concerned I'm getting worse, the bones in my skull really pain and become stiff.

I do apologise for the very long post, I was hoping my symptoms would mariculacy dissapear.

I feel I have a few autoimmune diseases but I don't want to address the problem as I do not want to appear I have a health anxiety.

What would you do?'my mind boggles with it all and I realise blood test is a starting point again, however if blood test are being ignored, or reccomendations from private sector get ignored because I went private in that instance.

Any thoughts welcome.

Kindest

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merissa
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Clutter profile image
Clutter

Merissa, I'm sorry you're having such an awful time.

If you post your most recent thyroid blood results with the lab ref ranges (the figures in brackets after your results) and your last ferritin, B12, folate and vitamin D results it will help members to comment and advise.

If you haven't had a thyroid test in the last 6 months it is time for another. TSH is highest in the morning so arrange your blood draw as early as possible.

Elevated thyroglobulin antibodies means you have autoimmune thyroid disease (Hashimoto's) which can make you feel hyper and hypo at the same time and treatment is usually commenced when TSH is >5.0. Many Hashi sufferers find a gluten-free diet can help reduce Hashi flares and antibodies.

thyroiduk.org.uk/tuk/diagno...

thyroiduk.org.uk/tuk/about_...

merissa profile image
merissa in reply toClutter

Thank you clutter, I'm ready to order some more blood test. :):) xx

Clutter profile image
Clutter in reply tomerissa

Merissa, Blue Horizon have an offer during November if you're ordering private tests.

healthunlocked.com/thyroidu...

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