Been on levo (100mcg) for 7 years after routine blood test showed elevated TSH (8-ish). 18 months ago developed numb toes, chest cough, increasing muscle weakness and muscle pain. Chest and neurology investigations showed no problems. Tried meat/fish/veg water diet with no benefit. Feeling completely dreadful and referral to rheumatologist forced further reflection (mother died at 56 following similar treatment and diagnoses - I'm 58). Reduced levo to 50mcg for a couple of days. Immediate improvement in toe sensation and muscle pain so stopped taking completely. Muscle pain gone. Sadly TSH 65 4 weeks later and 96 8 weeks later and increasing hypo symptoms (cough, sleepy, lethargic). Have now been prescribed 10 mcg liothyronine by GP after correspondence with endo at local hospital. Have arranged to see the endo privately next week (can't wait for NHS appointment due January 2015). Really appalled at the impact levothyroxine had on me.
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