Muscle Symptoms - Possible Over Medication? - Thyroid UK

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Muscle Symptoms - Possible Over Medication?

theriverman profile image
11 Replies

Hello, I'm still fairly early on trying to get my symptoms under control. Was diagnosed in August with a TSH of 36 and started taking Levo 75mcg on Aug 30 (10 weeks ago), then switched to Synthroid 100mcg on Sept 20 (7 weeks ago). I thought my symptoms were from a herniated disc until I started getting sick and got bloodwork, so that's why it took so long.

Current symptoms:

muscle fatigue in legs (unable to walk more than about 15 minutes without needing rest, this has improved since getting on medication but still a ways to go, at the worst point, just 5 minutes would completely wreck me for days),

muscle twitches,

hip aches/pains (these started after i got on medication but are not as bad now as they once were),

numbness in face (started after medication, endo thinks it may be fluid and it feel like it moves around),

left leg shakes sometimes at night when stretching it (gotten worse since medication),

muscle weakness (not too bad but gotten a little worse since medication),

fatigue (has improved since medication)

Since starting medication I've had 3 good stretches where my energy has come back and muscle symptoms improved a good deal, (4 days, 7 days, 10 days - last stretch ended a few days ago), but then my symptoms seem to come back again.

As of 3 weeks ago my tsh came down to 3.8, and while I know that's still a bit high, my endo said I might actually be over medicated bc my tsh has come down from 36 so quickly. I'm due for more tests again in a few weeks.

These were my test results as of 3 weeks ago: imgur.com/a/Mutd0ce

Any thoughts or anyone had similar symptoms? How long did they take to resolve? Any tips?

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theriverman
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11 Replies
NatChap profile image
NatChap

Have you had vitamin b12 tested? If not I would suggest asking for that along with ferritin. Your vitamin d is a bit low and if I'm reading your results correctly (they're a bit blurry on my phone), you also have Hashimitos (auto immune thyroid disease) so going gluten free may help reduce antibodies and improve symptoms.

Getting thyroid levels back up to an optimum level does take time I'm afraid.

theriverman profile image
theriverman in reply toNatChap

Yes b12 is normal, and I've gone gluten free for the past couple months.. I don't really think food triggers my symptoms though

NatChap profile image
NatChap in reply totheriverman

When you say normal...?

theriverman profile image
theriverman in reply toNatChap

VITAMIN B12---1,097.00 pg/mL211.00 - 911.00 pg/mL (i had taken a b vitamin so not sure)

METHYLMALONIC ACID---9.8 - <11.4 IU/mL (early b12 deficiency test)

jgelliss profile image
jgelliss

Sympathy and prayers to you . It's awful to have to experience aches and pains . It's very debilitating . In my thyroid journey I learned that having high FT-4 will cause me to have aches and pain. Having low FT-3 will cause muscle pains . I would suggest you have a full thyroid lab done . Make sure you get copies each time . Write on the lab results what dose you where on at the time . Journal your symptoms and learn your numbers of your lab results . I would recommend if your not on nutrients yet to get on them . And check your Electrolytes . Adrenals work with thyroids in unison . They help very much with our thyroid meds . You might find that going Gluten Dairy Sugar Coffee free is helpful too .

Read Excellent posts by *SeasideSusie* with vitamins and more .

*SlowDragon* has Excellent posts on Gluten free and more .

Wishing you to get sorted it out soon .

theriverman profile image
theriverman in reply tojgelliss

that's interesting about high t4 and low t3 as mine were near the high and low end of the normal ranges.. were yours way out of range when experiencing problems?

jgelliss profile image
jgelliss in reply totheriverman

My FT-4 values where from 1.2 -1.8 . My FT-3 was very low the highest I had was 2.9 . All along the Dr's assured me it was fine . It was Not fine . I was having terrible pain to the point I needed to go to the ER . Truth be told I was missing in action with my care . I trusted the Dr's more than I should have . I had TT and new Nothing about thyroids . I got Lucky and became more pro active and that's when the tides turned for me . I looked for Dr's that is out of the *Box* . And who *GETS IT* . My Endo is a great Listener and a very big proponent of dosing by symptoms . He runs labs too . He himself is a thyroid patient and doses with NDT . And allows me to be part of the decision making . I'm Blessed to have him . I hope you find a great Dr that will Listen and Support you .

Learn and read as much as you can about your thyroid . The fact that you joined this wonderful community is a Great Step in the right direction . Don't be afraid to ask questions . We where all once there too .

Your Not Alone .

theriverman profile image
theriverman in reply tojgelliss

I wonder how to find someone who will dose by symptoms.. my endo said she doesn't want to give me t3 yet but will consider at some point.. also said very much against me getting on NDT

jgelliss profile image
jgelliss in reply totheriverman

You might want to try taking magnesium and see if that helps you . It's very helpful with muscles . The heart is a muscle too .

theriverman profile image
theriverman in reply tojgelliss

I was on one for a couple weeks but then got tested and magnesium levels were normal.. not sure if it's BC i was taking supplements.. anyways I decided to stop, maybe will get tested again

jgelliss profile image
jgelliss in reply totheriverman

Way to go .

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