Hi all, I have written here before about my poor Mum who has been on the rollercoaster thyroid journey like many. I am at a loss as to what to do next. I had private tests done which show she is low on T3 2.9 pmol/L (range of 3.1-6.8) I have tried seeing a private endo (who was a total waste of space and did not address any thyroid issues - only dished out advice on nerve painkillers) I called the NHS doc yest desperate for help as my Mum is burning from top to bottom, has developed involuntary jerky movements with her limbs and is very confused and obsessed with a situation (blames herself as to why she is like this). I am literally crying out for help but no-one will help us. I am giving her B12 supplements and extra calcium and am awaiting T3 which should arrive any day. I am nervous about giving it to her but I feel I have no choice. All the Drs want to do is label her with dementia. we have been to a&e twice in two weeks and each time they have been useless (oh apart from getting onto the dementia route within two days) Does anyone have any other ideas? Do you think I am in denial that my Mums problems are to do with T3? I am doubting myself now. You have all been really supportive and I am sorry to have to keep coming back to ask the same things but I am so desperate to get my mum back.
It is appalling they endos are playing roulette with peoples lives. Not once have they done blood tests or further evaluation of their own - just go by the GPs TSH / T4 - I have the evidence that she's not getting enough T3 (horizon tests) but they brush it off as not relevant and tell me the results vary during the day... well they aren't going to vary that much are they. Surely as doctors they should be looking at why this T3 is low. They make the situation worse by pushing us away without so much as looking into things. If I had some evidence that the T3 is not the cause I would leave it alone and look elsewhere. She is due to see a psychologist on Wednesday (privately of course as NHS still haven't come back with a date). I wonder what he will do and if anything can be done if the hormones aren't right. Should I contact PALS?-help help help!