“Could a ‘renegade’ doctor save your life?” | D... - Thyroid UK

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“Could a ‘renegade’ doctor save your life?” | Daily Telegraph | 28 July 2014

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shawsAdministrator
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This article was posted in July and some of us made comments on it. I have been reading through more of the comments and note Dr Skinner's daughter Fiona's comment about her father and I copy and paste below Dr Afshan Ahmad's response and comment which should have more publicity:

I am grateful to Ms Anna van Praagh for her article ‘Why are doctors being demonised?’ in the Sunday Telegraph Magazine on the 27th of July 2014.

I would like to start by quoting some statements by Panels who sat in judgment at Dr Skinner’s Fitness to Practice Hearings in 2007 and 2011.

The Panel at Dr Skinner’s Fitness to Practice Hearing of the General Medical Council in Manchester on Thursday 17th November 2011 said, and I quote ‘The Panel cannot fail to take notice of the fact that your approach to treatment, whereby both clinical and biochemical parameters are assessed, falls within the guidelines of Good Medical Practice. In this respect your assessment of your

patients does not differ from Dr Akintewe. The difference of approach lies in

the weight given to the respective clinical and biochemical findings’. On the

same day the Panel also said ‘The safety and follow-up routine as described by

you have allowed the Panel to feel confident that patient safety is not

disregarded by you’.

Earlier at the Fitness to Practice Hearing in Manchester on Sunday 11th November 2007 the Panel said ‘It is clear that you (Dr Skinner) are a caring and compassionate doctor whose overwhelming concern is the care and well being of your patients’. The Panel also said ‘A large body of evidence has been submitted throughout this case demonstrating that many patients have benefitted from the medication you have

prescribed’.

It is important to understand Dr Skinner’s background in order to explain his position as a doctor treating patients by applying his outstanding scientific knowledge and experience to medical practice.

Dr Skinner started his career in Obstetrics and Gynaecology then moved into research publishing extensively on herpes and other viruses, vaccine development and was one of the pioneers of research into the association of viruses to cervical cancer. The Nobel Prize given to Professor Harald zur Hausen for establishing the link between human papilloma virus and cervical cancer confirmed that Dr Skinner’s basic research idea was correct albeit a different virus was responsible. Dr Skinner was admired for his fearless and exceptional intellect, independence of thought and great analytical mind.

In his capacity as a Consultant Virologist at the Queen Elizabeth Hospital in Birmingham he was referred patients who were thought to have Chronic Fatigue Syndrome, Myalgic Encephalopathy (ME) and other problems thought to be related to viral infection; he felt that a number of these people had classical signs and symptoms of hypothyroidism and treated them with thyroid replacement with encouraging results. He then started working with a number of General Practitioners to address the possibility that there may be a group of individuals who have normal thyroid chemistry but are suffering from hypothyroidism. The British Medical Journal published a letter in 1997 from Dr Skinner and a number of General Practitioners bringing this to the notice of the medical world.

Dr Skinner’s work involved a specific group of patients who have thyroid chemistry within the reference range but clinical signs and symptoms of disease; he argued that blood tests should not be pivotal in the diagnosis and treatment of hypothyroidism as they had never been validated as a marker of optimal health. Secondly, in this particular group of patients it was not known what their blood test results were when they were healthy therefore using blood tests as the only criteria for diagnosis was not sufficient.

It must be emphasised that Dr Skinner was not doing anything new nor prescribing new medication for the treatment of hypothyroidism; patients were diagnosed and treated for this disease based on clinical signs and symptoms and medical examination before blood tests were established and thyroid replacement using natural preparations was the norm prior to use of synthetic preparations.

The treatment Dr Skinner used was one that has been used for many years namely thyroxine which is the drug of choice for most patients with hypothyroidism and in those who did not respond to this he used the natural Armour or Erfa Thyroid which were used in the treatment of hypothyroidism before synthetic thyroxine was manufactured. His methods were scientifically sound and he always wrote to the General Practitioners and other medical carers to inform them of his reasoning behind the diagnosis and treatment of patients.

Dr Skinner’s clinic in Birmingham was a professionally run establishment which was registered with the Care Quality Commission with regular inspections which resulted in glowing reports of our administration and Dr Skinner’s care of his patients. All patients were given details of possible side effect of treatment both verbally by him and in the form of an information sheet. We must not lose sight of the fact that most medications have side effects and responsible doctors manage patient care by regular monitoring and follow-up as did Dr Skinner. We also have to understand that patients must be allowed to exercise choice in relation to decisions about their health.

Throughout his work with this group of patients Dr Skinner tried very hard to engage with the rest of the medical profession and address this difference of medical opinion which results in lack of proper medical care in this particular cohort. As far back at 1999 he organised a conference and invited Endocrinologists, General Practitioners and representatives of the Royal Colleges and Department of Health and other medical bodies to engage and discuss their difference of opinion and formulate a way forward for the diagnosis and treatment of these patients. No representative from any organisation except an epidemiologist from the Department of Health attended. The same pattern followed all efforts including further conferences, meetings and letters by Dr Skinner to have a public discussion with medical colleagues to address this shortfall in the care of this particular group of patients.

The Royal Society of Medicine’s response to Dr Skinner’s repeated request for a conference to address this problem was to organise a conference on thyroid disease and refuse Dr Skinner’s request to speak on his experience in diagnosis and treatment of hypothyroidism. The only Royal College which sent a representative to speak at the World Thyroid Forum organised by Dr Skinner in 2012 was from the Royal College of Obstetrics and Gynaecology to speak on fertility problems in hypothyroid patients.

Dr Skinner vigorously opposed certain aspects of the UK Guidelines at the time they were being formulated and lodged his ‘Document of Record concerning UK Guidelines for thyroid function tests’ in 2005 with all the Royal Colleges, National and Local Health Organisations, the British Medical Association and tried with the Society for Endocrinology who rejected it. He also wrote to Dr G H Beastall, Secretary, Guidelines Development Group, British Thyroid Foundation in 2005 to comment on the pitfalls in the proposed guidelines.

It is disappointing that Dr Skinner’s medical colleagues have been and still are behaving like bullies in a playground forming their gangs and stopping all others from engaging with doctors they have chosen to cast out of their inner circle. Sadly, they have neglected their duty in caring for these patients resulting in a serious shortfall in their medical care leading to unnecessary suffering and years of mental and physical ill health.

These Endocrinologists and General Practitioners have harassed Dr Skinner and doctors like him and instead of constructive scientific discussions have resorted to firing their guns from the shoulders of the General Medical Council and patients and their needs have been completely forgotten. It takes a great deal of courage and determination to persevere in the face of such adversity and Dr Skinner’s bravery and belief in doing the best for his patients brought respect and loyalty from all those who knew him.

This is borne out by numerous patients attending the General Medical

Council every time Dr Skinner appeared before them and by more than 2500

testimonials from patients presented before the General Medical Council at his

Hearings.

By their own admission, the majority of Endocrinologists and General Practitioners would not treat the patients who were treated by Dr Skinner so they have no experience of diagnosing and treating these patients. Dr Skinner successfully treated thousands of these patients and accumulated a vast treasure of information including blood tests and clinical signs and symptoms at their first

consultation and at follow-up.

The difficulty in publishing when one has a difference of opinion from the established medical world is that the so called ‘peer review’ journals are very much influenced by these self-professed ‘Experts’ who proudly proclaim that they are on the Editorial Boards of all journals of repute thus stifling any work which is contrary to their view. This has resulted in control of what is published and what is

rejected by a group of scientists and doctors who are preventing important

evidence in diagnosis and treatment of hypothyroidism from being debated in

mainstream medicine. A difference of medical opinion has been turned into a

territorial war at the expense of the patients.

Dr Skinner was a fearless doctor who was true to his Hippocratic Oath and behaved with integrity and carried himself with dignity in the face of callous and unprofessional opposition from Endocrinologists and General Practitioners who ganged up against him and tried very hard to discredit him; the support of patients whose lives have been dramatically changed by Dr Skinner’s care bears witness to his dedication and his determination to do the best for them. I hope in time doctors will be brave enough to once again put patients before all else and stop being so fearful of ‘senior colleagues’ and litigation.

It is a great loss to the scientific and medical world that this brave, articulate and fiercely independent thinker is no longer with us.

Yours sincerely,

Afshan Ahmad PhD

Worked with Dr Skinner for over 25 years

If some of our members would like to add their comments to the Telegraph about their treatment in general I think it is still possible to add.

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shaws
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15 Replies
rosetrees profile image
rosetrees

I'll check, but I'm fairly sure I commented at the time. We need to keep pushing the press to print increasing numbers of articles. I never met Dr S, but he sounds like a truly inspirational and charismatic man and I wish that I'd had the opportunity to meet him.

shaws profile image
shawsAdministrator in reply to rosetrees

Yes Rosetrees you did. It would be good if more than 252 (I think) commented. Even if they didn't know him, we need more doctors trained like him and Dr P and young doctors particularly to be trained to treat us and not the blood test.

Lizzy1606 profile image
Lizzy1606

There was a article in the Daily Mail a few weeks back ,The medical Journalist Jerome Burne as a web page (Body of Evidance ,Tick box medicine that fails Hypothyroid patients) He mentions the good work of Dr Skinner,

He also mentions a Dr Onyebuchi Okosieme who believes the case for adding T3 to treatment with T4 is compelling,although he says it's not yet strong enough to recommend it .He is now planning a study of different dose combinations involving 3000 patients in Wales.

You can leave comments

It states that Dr Okosieme is a consultant at Prince Charles Hospital Merthyr Tidfil.I have a appointment at this hospital in December (not with this doctor but i shall enquire about is study and let you know)

shaws profile image
shawsAdministrator in reply to Lizzy1606

Thanks for that info and I hope Dr Okosieme isn't shot down in flames if T3 shows a positive effect.

humanbean profile image
humanbean in reply to shaws

The companion article to the Daily Mail piece can be found on (the author) Jerome Burne's blog here :

jeromeburne.com/2014/08/26/...

It is still possible to comment on it.

shaws profile image
shawsAdministrator in reply to humanbean

Thanks, I have done so.

Lizzy1606 profile image
Lizzy1606

So do i ,I googled him and is main interest is surpose to be Thyroid but i have attended this hospital for thyroid for 10 years and have never seen him or even a glimce of him .But i will ask and volunteer if they will have me and it goes ahead ,i did ask at my last appointment for a trial of T3 but was told to ask GP ,but i haven't asked .I will let you know and i know that if i need help with any questions or answers where to come.

shaws profile image
shawsAdministrator in reply to Lizzy1606

I found it and I believe it has been posted but it is interesting and here it is. If you do find that you can see the above doctor, email louise.warvill@thyroiduk.org with info.:-

dailymail.co.uk/health/arti...

Lizzy1606 profile image
Lizzy1606 in reply to shaws

Yes will keep you informed .

DavyB profile image
DavyB in reply to Lizzy1606

Hi Lizzy, how did this treatment go after? And did you see Dr Onyebuchi Okosieme? :)

Lizzy1606 profile image
Lizzy1606 in reply to DavyB

Hi DavyB

I spoke to his secretary at the time of posting the above and she referred me to another department . I was told that he does quite a lot of research but was not doing any at that time ,i did mention about what he had said about the T3 trials but they knew nothing.

I did write a letter to the consultant i was under asking for a trial of T3 , and if the above doctor was going to do a trial if i could take part . But nothing came of it .

I no longer attend the hospital for thyroid treatment as was told that the GP is perfectly capable of doing this .(You have to laugh ,but i wish they were more capable) So January this year i started self treating with T3 . Its early days but getting there .

DavyB profile image
DavyB in reply to Lizzy1606

Fab, and thank you for the reply :) Sounds like I am following similar steps as you and will be self treating with T3 even before I see hospital consultant :D Hope all keeps going well with you too :)

Lizzy1606 profile image
Lizzy1606 in reply to DavyB

If you are going to self treat with T3 start at a low dose and increase slowly . Keep a record of how you feel and what dose you are taking . It takes time but you will get there i feel loads better in myself .

Just to say i am not taking T3 only i lowered my Levo and added T3 . Hope it goes well for you .

DavyB profile image
DavyB in reply to Lizzy1606

Thank you, will let you know :)

Daffers123 profile image
Daffers123

I spend a lot of time researching thyroid illness, and have learnt a lot from articles written by Dr Skinner and indeed about Dr Skinner, by his grateful patients. If only there were more enlightened pratitioners amongst our GPs and endocrinologists, getting the correct treatment for this disease would be much more successful. Dr Skinner is a great loss to the thyroid community and I wish he had been able to train more doctors to work with his methods which certainly work well for we patients.

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