13 year old boy with goiter and odd blood tests

I touched on this last month before I got results.

My son aged 13 has a goiter, scan shows inflammation (no nodules though) he is very symptomatic for hypothyroid (I am hypo).

His blood tests:

Antibodies - normal though no numbers given

TSH - 5.8 (0.34-5.6)

T4 - 10.8 (7.5-21.1)

T3 - 5.2. (3.5-5.6)

It seems a but odd that the TSH is out and the rest is normal??

we have an appointment in August with a Paediatrition Endo , but the GP thinks the TSH is not high enough to treat.

He has been having breathlessness along with fatigue and falling behind at school (which is my biggest worry ) he also has some unexplained hearing damage, though he had had Glue ear on and off since he was 9.

Any info would be great, it upsets me to see him so low.

11 Replies

  • In my book he is hypothyroid

    What is his Free T4

    but is it possible he has been getting a high dose of iodine or kelp from somewhere because that could cause swelling of the thyroid as also iodine deficiency can cause a goitre

  • Jessiepup, I agree with RFU that your son is hypothyroid. His FT4 is low but his FT3 is very good. It's a shame your GP hasn't stated him on Levothyroxine but he probably doesn't want to start treatment the paeds endo may not be in agreement with.

    A poster mentioned recently that selenium inflamed her thyroid but drinking chocolate milk which contained iodine soothed it and reduced the inflammation despite her being intolerant to milk.

  • I don't think he is getting excess iodine, if anything he doesn't get enough. Do you know if uk salt is iodised?

  • I don't think so. I've seen Pink Himalayan salt recommended and I think it's available in health food shops and probably on Amazon.

  • Jessie, see the references to iodine healthunlocked.com/thyroidu...

  • Ok thanks, though I don't know if he needs iodine or not

  • It looks like your son needs a high level of T3 in his system. His T3 result is near the top of the normal range and the high TSH is telling his thyroid to make even more thyroid hormones! His thyroid has been working overtime and this has caused the goiter.

    This and the fact that you are also hypothyroid points to a genetic condition, known as thyroid hormone resistance or reduced sensitivity to thyroid hormone. With this condition there is a problem with the thyroid receptors or something else which causes normal or even high levels of thyroid hormones not to work. The treatment is to take a single daily dose of T3. Normally this has to be a very large dose.

  • Hi Samdy

    Any idea if his consultant will come to this conclusion?

    Will he be prescribed T3?

  • Extremely unlikely that the consultant will consider this, so you need to go armed with as much information as possible.

    There is genetic testing available, but again very unlikely that your son has any of the identified syndromes. There are a number of people on this forum with the condition, who buy T3 from overseas and self medicate. This is very difficult with a child so you need to try to get a doctor on your side.

  • Thanks Sandy, I am also trying to persuade my son to try a Gluten free diet as it is the one thing that made a difference with me, (his brother has been GF since age 9 and is really well)

    unfortunately he has been told by a doctor that his Thyroid is ok so he is not interested in trying - so frustrating!

  • I am assuming he has inherited the condition - myself, my mother, my auntie, my cousin, my grandfather , my husbands mother and auntie all have Thyroid disease of some kind.

    I would be reluctant to give him iodine, I myself have tried both iodine and selenium both with extreme hyper sideffects .

You may also like...