Why not join me and use your own story? Adding ... - Thyroid UK

Thyroid UK

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Why not join me and use your own story? Adding a personal story may poss help increase signatures for those unfamiliar with thyroid issues.

Pooh10 profile image
3 Replies

PLEASE HELP and if you agree sign and share the e petition below.

THYROID SUFFERERS REALLY NEED YOUR HELP.

Anyone can succumb to Thyroid disease although it mainly affects women. The results can be mild to very severe. It has the ability completely to destroy a person's and their family's lives, e.g. unable to work, infertility problems, relationship problems and severe mental health problems. I could go on.

I myself have lost nearly 15 years to this debilitating disease. Despite all efforts, I've lived in constant pain, experienced extreme weakness, cognitive problems, severe dizziness/vertigo to name just a few symptoms. This made me largely house bound, unable to participate in much of daily life and reliant on others for help. Throughout this period,the NHS only offered me thyroxine (T4 the inactive form of thyroid hormone).

Thankfully, having done much of my own research, I'm now on the road to recovery having found other treatment options namely, Liothyronine/Triodothyronine (T3 the active form of thyroid hormone) and Desiccated Thyroid (NDT) which contains T1, T2, T3, T4 and calcitonin (the same as a human thyroid).

Many people do well on the conventional treatment of T4 only. However THOUSANDS of thyroid patients are suffering unnecessarily. The economic cost to the UK in terms of general and mental health care, welfare benefits and employment costs of maintaining this narrow approach must be significant and I have little doubt would well exceed any additional cost which a broader choice of NHS medication options would require. So in real terms, although hard to quantify, there would probably be net saving to the Exchequer and NHS.

LET'S SEE IF WE CAN MAKE A DIFFERENCE FOR THYROID SUFFERERS IN THE UK AND POTENTIALLY GLOBALLY.

ALL WE NEED TO BE HEARD IS 10,000 signatures. WHY NOT HELP US REACH OUR GOAL OF 100,000 signatures.

Many thanks for you help.

Best wishes

Melanie

epetitions.direct.gov.uk/pe...

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Pooh10
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3 Replies
Pooh10 profile image
Pooh10

If it's to do with signing the petition, Facebook or Twitter my understanding is to use your real name. There may be other media where you can stay anonymous.

Clutter profile image
Clutter

I don't know but I doubt that names and addresses are checked. If they try to verify you and can't, surely the worst that can happen is your signature will be invalidated.

CarolineC57 profile image
CarolineC57 in reply toClutter

They do need a correct email address as they send you a link to confirm that you were intending to sign the petition - but I guess you could give a made up name/postal address if you wanted to. I don't think the name/address gets displayed on the site - I didn't see anywhere where it was displayed anyway. I've signed it!

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