Help: Hi Everyone HELP Blood test results. on... - Thyroid UK

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Afaghieh profile image
14 Replies

Hi Everyone HELP

Blood test results. on Liothyronine 20mcg daily. tsh4.12(6/02) lab didn't do t3 requested t3 (22/02) today i have results.

tsh 6.73 and freet41.3 they have failed to do t3again. I am screaming. I have been chasing since Sept. I care for 3 individuals every other week no time and I am 76 yeards old FED UP.

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Afaghieh profile image
Afaghieh
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14 Replies
puncturedbicycle profile image
puncturedbicycle

Ugh, sorry to hear this. I remember when they did this to me and I felt exactly like you do. Do they know you're on t3? You might need to write the practice manager or your gp. If you're on t3 you need them to write that on the form.

Your tsh is too high - both sets of results are too high - but you probably know that. How do you feel? If you have the ranges for these tests maybe you could post them.

Don't worry. This is frustrating but you'll sort it out.

Afaghieh profile image
Afaghieh in reply topuncturedbicycle

Hi Puncturebicycle. So glad to hear from you.

puncturedbicycle profile image
puncturedbicycle in reply toAfaghieh

:-)

shaws profile image
shawsAdministrator

Hi,

If you take T3 alone you should have a very low TSH, high T3 and very low T4 (as you aren't taking any).

Maybe you need an increase in your liothyronine to bring your TSH lower.

It's unfortunate they didn't do your T3 too.

shaws profile image
shawsAdministrator

Just had a thought. Before the blood tests were brought in in the '60's patients were dosed according to their clinical symptoms and until they felt well. There were no blood tests to dictate how much, it was down to every individual's needs. Your body is good at letting you know if it has too much or too little thyroid hormones.

Afaghieh profile image
Afaghieh in reply toshaws

Thanks Shaws When on 40 mcg I started getting smell in my nostrils thats why i cut it down to 20mcg then smell disappeared.

abby100 profile image
abby100 in reply toshaws

I'll bring a USA perspective to this if you don't mind. Most people and primary care docs too, have so little knowledge of what is an Endocrine issue that patients are to often dismissed, diagnosed much to late, and treatment started to late. You Thyroid is the MASTER gland in your body, it controls EVERY cell and gland in your body. You need a ENDOCRINOLOGIST that specializes in Endocrine glands and Diabetes, if you truly want your test right. Certain foods, supplements, herbs will cause your med to run "HOT". These are Iodine rich over eaten foods, even drugs for other things will make it run HOT. We use Synthroid as the main line drug to treat Hypothyroidism. It has a generic, but I find it does not work as well and the fillers have side effects the name brand doesn't. I'm sure our tests read different than yours, as do the drugs you use. Knowledge is POWER, do online research, print it out and make sure your stupid non understanding or caring doctor reads it in front of you. If necessary change doctors if you can. But the ENDOCRINOLOGIST is the BEST doctor to treat an Endocrine disease. My Primary who is new to me, was running T panels with out telling me. I had a bout of real bad colon infection that landed me in hospital for several days. But continued to have colon spasms, was give a colon spasm drug, so the next panel he ran, ran HOT or High. So he immediately wants to run a Radioactive Thyroid Scan with out ever laying a finger on the gland or knowing that a new med could cause a change in a panel reading. I turned down the Scan as it is dangerous. And he is not supposed to run test the Specialist run. Took me 1 minute on Goggle to find the culprit, the new spasm drug. He also knew I saw the Endocrinologist in 2 months. Bill Padding is what we Yanks call it when a Primary runs test that only your specialist should be running. We still have the right to chose our doctors, but not for much longer if we can't get this Obamacare repealed it really is messing up our health care system and causing many to lose their jobs or go on part time work. It even effects our Military's health care and especially our Senior's health care.

puncturedbicycle profile image
puncturedbicycle in reply toabby100

Here in the UK the endo is often the doc who is the most attached to the rigid protocols which can keep us ill.

With respect, this is not a political forum.

abby100 profile image
abby100 in reply topuncturedbicycle

And we are the opposite, our Endo's treat better and sooner. But if you stop and think, if your government controls your health care system it dictates what and how doctors can treat you right down to the doctor you see or the drugs they can write. The 2 do go hand in hand. Our aunt in Canada could not even change Primary, when she fell and broke her back, her primary refused to treat her, told her she was 'to old', go home and DIE. Her heart doctor treated her, it took a long recovery, but she lived another 7 yrs, she went from a wheel chair, back to walking again and taking care of herself. It is a clear example that government should not control your health care entirely. Some regulation is needed to get bad meds or doctors off market or out of practice. And you should be free to see the drs of your choice. I've been referred to some real butchers who should never have been allowed a degree much less see or treat a patient. I can FIRE them, and have. You are use to your government having complete control, we are not and we don't want it. If we are sent to a control freak doc, we can change docs. But that will soon change as government begins dictating what and how they can treat. We have read the horror stories about your health care system, we don't want them in the USA. Our politicians have better healthcare than we get. It's not right or fair and WE taxpayers pay for it. It takes people willing to buck what is wrong to fix it. Why settle for bad, when you can have good? Why have to wait months to see a dentist or get cancer treatments or test? Countries that have very restrictive systems, their pols come to the USA for treatment while you are left with the crap they impose on you.

HarryE profile image
HarryE in reply toabby100

Sorry, but this is a thyroid self help group,not a soapbox. We are all well aware of the failings of the UK system thanks, but we have to work with what we've got while trying to change it in the process

Afaghieh profile image
Afaghieh

Results Sept on 40mcg Liothy daily. tsh 0.01 Range 0.35-5.5 t4 2.4 Range 10.5-20 t3 8.9 Range 3.5-6.5

Jan on 20mcg Liothy daily

06 Feb tsh 4.12 Range 0.35-5.50

22 Feb tsh 6.73 Range 035-5.5 t4 1.3 Range 10.5-20

I have to add as from 22 Feb I am also taking thyroxine 25mcg daily. My practice does know about Liothyronine. I have written to the hospital which does the test and given them telling off.

shaws profile image
shawsAdministrator in reply toAfaghieh

Your slight rise in meds may do the trick and after 6 weeks you can maybe try to 30mcg. Sometimes a rise of 5mcg each time enables you to drop meds down quickly if you feel its too much without

a drastic effect.

Afaghieh profile image
Afaghieh in reply toshaws

Hi Shaws You are great. So relieved. Thanks

Afaghieh profile image
Afaghieh

Hi Reallyfedup Thank you willl do just that.

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