I developed a goitre at the age of 25 and this lead up to the decision by the medical profession I needed to have a total thyroidectomy as this could lead to it getting larger or possibly cancerous. I didn't question why or what the long term results would be. The consultant said "you have to take this tablet 150mg (t4) for the rest of your life, it's as simple as that".
Well I changed as a person, the usual symptoms, as most describe on this site, noticeably weight gain, irritability, brain fog, etc, etc. I tried to accept this is how it will be for the rest of my life.
I had been on the same dose for 9 years through two pregnancies, then my dose was reduced to 125mg (probably based on TSH level) since then my symptoms have increased .
I was in a conversation with a friend who said her friend who had trouble with her thyroid had benefitted from trying another drug and it helped her. My eyes lit up!! and I decided I needed to dedicate time out of my busy schedule to investigate my thyroid health. Then I found thyroid UK what a fabulous site this is, I'm on it everyday, my husband keeps saying "what have you learnt today darling" he is so relieved I have this support, so I wanted to say a huge THANKYOU.!!
At the moment I have got a very understanding doctor ( yes, no many around) who requested full blood works
T3 - 4.1
T4 - 23.2
Then referred me to an endo, the same one that saw me 18yrs ago, who took a biopsy on my goitre! Was such a nice man, I asked if I could try T3 as my results were low and he said " I want to rule out adrenal fatigue first, if that comes back ok, then I will prescribed 20mg T3and 100mg T4." Wow couldn't believe I was hearing it, I might get what I asked for.
That's what I am currently on and have just had my recent bloods taken again, they now are
T3 - 4.8
TSH - 0.05
T4 - 15.3
I have been on this dose since December and feel soooo much better. Not 100% percentage but getting there slowly. Do you think my t3 levels should be higher?
I didn't take thyroid meds the day before my blood test, so it could have been higher? Love to know your thoughts.