Long story short..... have just had results back from hospital admission in November. They include vit D of 173 and ferritin of 10!
Dealing with the vit D issue isn't such a problem, just a matter of getting supplementation level correct. I keep being told I'm low one minute then high the next. Yet they're always reluctant to do the test. And they've never prescribed Vit D, I've also sourced and paid for it myself! And 10000iu/day seems to take me too high, whereas 5000iu/day gets me too low. And it would seem that even aiming for 7500iu/day by taking 1 tablet one day and 2 the next is taking me too high. Or is it? Is 173 ridiculously high?
Anyhow, main issue is the iron. Clearly I need supplementation BUT I absolutely cannot tolerate oral iron in any form whatsoever. It bungs me up like concrete. And I already have quite severe problems in that department (Sjogrens, APS, steroids, hypothyroid). So I will need infusions. What experiences do you all have (a) of getting these from your NHS GP and (b) the effects/side effects of the infusions themselves?
Also, I seem to recall many posts saying we need to be at a ferritin level of at least 70. Is that right? And why is that? What happens/doesn't happen below that level?
Can you direct me to any supporting evidence to wave at medics if they prove truculent?!